redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Feb. 19th, 2025 06:38 pm)
Today's visit was longer than I expected, but hardly unpleasant at all.

I was there for them to take impressions of my teeth, so they can make the dental implants and bridge. I expected it to be very unpleasant, because at last spring's visit to make the temporary "flapper" (which never did get comfortable), it took three tries before they got a usable impression.

I mentioned this up front, and they did the first two (out of three) impressions with a smaller tray for the modeling material. It also helped that this modeling stuff hardens faster than the one from last time, so I didn't have to carefully hold still for as long after biting into it.

It will probably take the lab six to eight weeks to make the implants and bridge, and they'll call me to make an appointment once they know.

This is going to be expensive. The paperwork they had me sign for this, after warnings about possible complications, said that I'd been given the chance to discuss what it would cost. So I asked the dental assistant, who said she'd have to go get the dentist; he in turn had the receptionist call my insurance company. The answer is that it will probably be between six and eight thousand dollars, which Vitaly said is a major discount from $12,000-$16,000. They had me pay $4,000 today, and will contact me when they hear back from the insurance company. I called Aetna a few weeks ago, on Adrian's behalf, to ask about coverage for implants, and the agent told me they're not covered at all. (She and I happen to have the same health and dental insurance, so I could call and give them my own membership number rather than saying I was calling on her behalf.)

ETA: There is of course no way to do this masked, but there were very few other people at the dentist's office, and the dentist and his assistant were both masked. I put on a fresh N95 mask, and used the Betadine iota carrageenan nasal spray, before leaving the house today, and am hoping those protect me from covid, flu, and whatever else might be going around.
After multiple attempts to get information about this alleged copay assistance program, I have paid the (high) copay for the Kesimpta, so a dose will be here tomorrow. This morning, I tried chatting with an agent on their website, and the site logged meout in mid-chat twice, and the third time the agent just wandered away after I asked a question and I eventually gave up and picked up the phone. That also took a few tries, before reaching the right department, and someone who could actually see the chat logs from earlier in the day.

The combination of foot-dragging and contradiction about the copay assistance program leads me to suspect that there is no team working on payment assistance, and they're just trying to delay filling prescriptions. The insurance company requires me to use this specific "specialty pharmacy," and they're part of the same corporation, so it may not be in their interest to fill the really expensive prescriptions, depending on how much of that high price would eventually go to the drug company, rather than transferring money internally between Aetna and CVS.

This morning's round of contradictions was agent 1 saying they had been waiting for an ICD10 code, but were now working on finding me help, and agent 2 saying they needed that information and would reach out to my doctor about it.
I am not happy with cvs caremark: after asking for, and getting, my explicit permission to look for help paying for my expensive MS drug, they somehow decided that wasn't sufficient permission. And they were waiting until I got around to asking for an update to tell me this, after having told me that I shouldn't expect to hear from them for at least a week.

That's a week of wasted time, and maybe they'll call me within 24 hours as the chat agent said, and if so, maybe they'll be able to get me help, but I don't know how soon, if at all.

I have a call in to the nurse at the MS clinic, asking how long I can reasonably wait between doses of Kesimpta. I knew from a while ago that six weeks between doses would be fine, so I figured a week ago that I could spare a week or so for them for possible payment help, but they just used up that week.

I am additionally annoyed at the chat agent's generic apology for the "inconvenience," from someone who already knew that I had contacted them because I was waiting for my medication. She also, when I asked what days they ship, said Tuesday-Friday, and when I asked a clarifying question it turned out those are the delivery dates, and they ship Monday-Thursday. I'm hoping the nurse tells me that eight weeks would be OK. If the answer is seven weeks, that would mean placing the order by next Tuesday.
The newest plot twist is that I got a phone call this morning from someone who said she was calling from the specialty pharmacy, that the copay was the same large amount they told me yesterday, and would I be interested in assistance paying that? When I said yes, it turned out the process from there is that she sends a message to someone, who will look into it and get back to me. (Last year, the drug company was covering my much smaller copays, but that program explicitly excludes Medicare.)

When I mentioned the call to Cattitude, he suggested I check to make sure it's legit. The drug company's website had nothing relevant. I then tried calling the pharmacy and got nothing useful, so I opened another online chat. The agent confirmed that this is a real thing, with the disadvantage that it can take a while. She said they have a team whose job is to look for foundation or other grants that might help, and then help me apply if they find anything. I'm on that team's list of patients to try to find help for, but there's a queue.

The current plan is that the delivery has been rescheduled for Saturday, and if I don't hear from them by Friday I'll postpone it a few more days. I'm not sure how long I should leave this for, and I may call the MS nurse and ask how long it's reasonable to wait for the next dose. (I think the most recent dose was Dec. 13th, because that was my last reminder in Google calendar, so I've got a couple of weeks, maybe more.)

I had been thinking that Kesimpta costs enough that I will definitely hit the annual out-of-pocket maximum, and that it doesn't matter much whether I hit that number in February or later in the year, but this might keep my total prescription drug costs for the year below the cap.

Pasting in part of the conversation with the chat agent:

Read more... )
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Jan. 13th, 2025 06:20 pm)
1) I finished the Dificid (antibiotic) Friday morning, but am still having occasional bouts of diarrhea. numbers )

So I called the dentist to reschedule, since I can't count on being able to sit still in the dental chair for long enough, and then called my doctor's office.

Carmen just called me back, and I told her what's going on. She took notes and said she is going to send a message to someone who knows more about C. diff. We were talking at 6 p.m., so Carmen didn't expect an answer today, and said she will call tomorrow if they don't respond, and that she'll call me back tomorrow or Wednesday. In the meantime, I am continuing the probiotics.

2) I got email from CVS Caremark at about 3:00, saying they had my prescription and would "begin processing it shortly. If we run into any issues while filling your prescriptions, we will contact you or your prescriber." Having heard nothing for a couple of hours, I used the chat on their website to ask for status. In reply, the agent told me what the copay would be. I asked how to pay that, but when I tried to follow those instructions, it showed a zero balance. Back to chat, where the agent told me that the way to add a payment method was via "set up automatic payment." I have done this, but that took long enough that it now says I will get the Kesimpta on Wednesday.

Given how healthcare works in the US, I didn't expect it to be that hard to find out how to pay them.
Tbis is, I hope, somewhere in process with CVS Caremark, but it feels like I've been pulling teeth to get that far. One Wednesday I got email saying that they had received the prescription, and I need to do anything, but giving a chat link if I had questions.

I tried that this morning. The agent said that the prescription was scheduled to be filled next Wednesday, and gave me a phone number if I wanted it sooner.

When I called, I discovered that they were trying to reach my doctor for some unspecified "clarification," but all the agent could see was that they had made at least one attempt to call my doctor. She suggested I call his office myself.

This was easier said than done. What should work--calling the MS clinic, and pressing "1" to talk to either Dr. Sloane (or Dr. Vanderhorst), didn't. The phone just rang until I got bored and hung up, this time after 10 or so rings.

What did work was calling the main number for the entire hospital, being transferred back to the MS clinic, and rather than pressing 1, waiting for a *beep* after the three choices, and then starting to talk. I was half a sentence into leaving a message when someone actually answered the phone. She asked my name and date of birth, and said she could send him a message. So I left one, asking them both to contact the pharmacy and to call me back.

The MS nurse is supposed to be back from vacation on Monday, and if I don't hear from someone by lunchtime Monday I'm going to call her cell phone, which is set up properly for people to leave messages.
Adrian went to the pharmacy and picked up my prescriptions. One of them was run last year, and they charged a copay of fifteen cents, which I think is the lowest I've ever been charged. Yes, mirtazapine is an inexpensive generic, but that still surprised me. This year's insurance has zero copay for "tier 1" drugs, but they ran this prescription last month, on the old insurance. The pharmacist said they'd run my other prescription on that insurance yesterday, which seems odd but I'm not going to worry about.

Adrian then waited in another line to give them her and my new insurance cards and numbers, and they told her that the insurance company had taken care of it for us, which surprised me. The pharmacy returned my second phone call about this a couple of minutes after Adrian told me it was taken care of, which I told them when they started to run through the questions to confirm my identity.

ETA: I just checked whether the dental insurance part of my new health insurance covers out-of-network dentists. The answer is yes, which I learned during a slightly frustrating conversation with someone at their call center. Quite a few plans don't, including both my and Adrian's old plans.

Even straightforward calls to health insurance companies can be draining, and I had to repeat myself a bit on this one, but now I have the basic information.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Jan. 2nd, 2025 07:55 pm)
I've spent what felt like most of the day on phone calls about medical-adjacent subjects, much of it related to insurance and billing rather than actually about medical care, and I'm still waiting for calls back from CVS and the nurse at the Beth Israel MS Clinic. This feels like invisible labor, in part because it's mostly about getting past stupid artificial obstacles: having changed health insurance means needing to get my MS drug from a different mail-order pharmacy, and the person at Aetna said that this isn't something that can be handled by transferring the prescription from the current pharmacy. That's why I have a call in to the MS nurse.

I'm also waiting to hear back from CVS about how to tell them I've changed insurance. Every time I call about anything, they urge me to download their app, but it's not set up for this. Neither is the website. I suspect this has to be done in person, which probably means giving Adrian my new insurance card, so she can pick up my prescriptions.

I sometimes fill prescriptions through Capsule, which is delivery-only, and that app just needed me to upload photos of both sides of my insurance card. CVS also has a phone app, which ought to be able to do the same.

Around and after all of those annoyances, I did a bunch of PT. Not only is it good for me, it felt like I had accomplished something. It's repetitive--I've been doing basically the same PT exercises for years--but it doesn't involve arbitrary hurdles that are designed to make people go away.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Nov. 9th, 2024 03:03 pm)
I have now received from Aetna, in order, a SilverScripts card (prescription drug coverage only), followed by a letter saying that they couldn't process my request for enrollment in a Medicare Advantage plan for 2025, and now a Medicare Advantage card that was printed on Nov. 1, 2024.

I called Aetna two days ago, after receiving the letter saying there was a problem with the enrollment. I think the 2025 plan application is now sorted out, but I should call Medicare and ask what they know about my 2024 and 2025 coverage.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Nov. 4th, 2024 05:56 pm)
I had a follow-up appointment with Dr. Sloane today.

In no particular order:

The low-tech neuro exam was reasonably good; I did worse than last time on the pattern-matching thing, and better than last time on the pegs to test dexterity.

He wants me to have some blood tests, but I'll have to go back for that, the lab closes at 4:30 and it was about 4:45 when I was done talking to the doctor. Just walk in, they're open 8:30-4:30, I can have this done either in the building I was in today, or another Beth Israel Deaconess location if that's easier.

He doesn't think I need to see the neuropsychiatrist for medical reasons; I think if I'd said I still wanted the appointment, he would have been OK with that too.

I should get an MRI, brain and cervical spine, with contrast. I may put that off until January, I have to figure out what's covered by Medicare, and when. From looking at Medicare.gov, it looks like I'd be paying an annual deductible and then 20% of the "Medicare approved amount"; that 20% seems to be on the order of $100 for an MRI, and I don't know if this would count as one scan or two. (Do more research later, I'm not scheduling anything tonight.)

BID has a specialty pharmacy, and I can get the Kesimpta there instead of having it shipped, he thinks. I won't need another dose until mid-January, and I may wait until the new year to get that, also for insurance reasons. Dr. Sloane also gave me another copy of a Kesimpta info sheet that has a phone number to contact if I need the drug for free.
I decided on a plan, and called Medicare for help with signing up, rather than going through the insurance company website. This turned out to be a good idea, because I am signed up for the "Aetna Medicare Discover PPO" 2025, but the agent couldn't set that up for 2024 because, on paper, I've been enrolled in Medicare (part A) since April, which is more than three months ago. (Never mind that I only found out about it a month ago.)

I asked the agent about buying a prescription-drug-only plan, and he found me one for $15.70/month that covers most of my prescriptions (excluding the Kesimpta). I bought the plan mostly just in case I get sick in November or December and need something more expensive than doxycycline. The interesting question now is, will I be covered by my previous health insurance for the next week, or does it go "poof" sooner? I think Cattitude needs to be the one to call the Massachusetts insurance marketplace and confirm that I'm now on Medicare, but he still wants to buy insurance through the marketplace, because his name is first on that account.

ETA: I think the Silver Script formulary does include both gabapentin and bupropion, and that the agent missed that because I gave him the brand names.
I went to REI today in search of a fall-weight jacket. I now have a jacket that will do, but that I am not delighted by, so I may try another store or two next week. The new jacket's fit is OK but not great, and it's black, so it can easily get lost among all the other black coats in that closet. I also bought a pair of gloves; again not great, but I've given up on finding gloves I actually like.

My retroactive disability benefits were deposited in my bank account a couple of days ago. It's more than I expected, because I'd forgotten that the lawyer gets a percentage "or $7200, whichever is less," so instead of 25% he got about 15%.

I'm spending a bunch of time looking up different Medicare Part D (prescription drug) plans. cut for length )

My next project is to compare the available "Medicare Advantage" plans. The disadvantages of those plans are that they limit my choice of doctors, and require referrals for some doctors. Possible advantages are that I think I'd have a smaller copay per visit, that this may be the only way to get them to keep covering telemedicine appointments with my regular doctor, and one or more of those plans may cover something else I would use. Basic Medicare will stop covering telemedicine for most people at the end of 2024 (the exceptions are a few specific medical conditions I don't have, and people living in rural areas).
tl;dr: Train ticket and appointments sorted, and I think the prescription is too.

prescription and insurance nonsense, phone calls, train tickets )
The pharmacist and I have, I believe, fought the insurance company to a draw: they won't be paying for the prescription, but I will be paying about the same amount as my copay would be if they were covering it.

As far as I can tell, the insurance company decided it doesn't like the way the doctor sent in three consecutive 30-day prescriptions, even though it worked last time. In fact, they covered the first and second of these three.

I discovered this because the CVS robot said the prescription would be ready today at noon, and then I got a message saying they were reaching out to my doctor for an alternative medication, so I called the pharmacy. The pharmacist told me that the problem was with the insurance company, and I asked him to check what it would cost me if I didn't have insurance. He said he thought it was over $100, but checked, and said it would be $49. I told him to go ahead and fill it, and he did something at his end and told me had found a coupon and I'll be paying $20.40 (or thereabouts).

I am noting this partly to remember to tell Carmen about it next month and ask if we need to do something different next time.
I spent what felt like a lot of time over the last few days talking to the pharmacy, and my doctor's office, trying to figure out what the insurance company was doing with the Ritalin prescription this time, before finally managing to get it sorted out and picking it up on my way back from visiting my doctor for the wart treatment. I'm not going to try to explain what the insurance company was doing, or why, because that would require me understanding it; in the end my copay was less than I expected.

I spent a couple of hours in Davis Square, eating lunch and talking to my friend Elizabeth. Mr. Crepe no longer has any outdoor tables, but they're basically across the street from Davis Square, which does. That was fun, and we hit the sweet spot between too cold for people to enjoy sitting outside, and too hot for me to function well.

The doctor decided that the skin on my left index finger is sufficiently recovered that it was reasonable both to try freezing the wart, and that I can go back to using the salicylic acid pads. I was only able to tolerate about 15 seconds of zapping this time (instead of two 30-second zaps), which I hope means we're actually getting the cold on the wart. If the next round doesn't do it, they'll send me to a dermatologist.

Also, when I got to the doctor's office, I saw that the staff were all masked, as were about half the people in the (small) waiting room. After a couple of minutes, someone came around with disposable medical masks and told the unmasked patients to put them on. One person argued that that's no longer required, and was told "this is a private practice, we have different rules."

I thanked the person who was handing out the masks, and also mentioned this to Andrea, once I was in the exam room. She said they haven't decided what their policy will be in the future-, but assured me that not only can I keep masking regardless, but I can ask whoever is treating me to mask even if they decide not to require masks from either patients or staff. That's about as good as I think I'm going to get anywhere, and better than a lot of places.
For about three days, I was worried about whether I would be able to get my gabapentin (generic for neurontin) prescription refilled on time. This morning, I talked to a neurologist, who called it in, at the dosage I need, and the pills are now safely in my apartment.

cut for length )
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Mar. 26th, 2023 11:41 am)
I just went over to CVS, waited for the pharmacy to open so I could get some insurance-paid covid tests, and discovered that my insurance company has stopped doing that. The pharmacy clerk did say my insurance would cover the tests up-front if I could get a doctor to write a prescription, but sounded like she didn't think that was likely.

We have few enough tests left that I paid for one box, and will figure out how to put in for reimbursement. When I see the doctor on Friday (for something unrelated) I am going to ask her about prescribing some of those tests.

I am also not happy that Massachusetts charges sales tax on those covid tests.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Dec. 7th, 2022 07:09 pm)
I just spent a frustratingly long time trying to figure out what health insurance plan we should buy (Massachusetts, via HealthConnector). The hard part was finding out how much different companies would charge us for what looks like essentially the same level of coverage. I know I'm not eligible for MassHealth, that's not what I was asking it, but I had a lot of trouble finding the information I wanted.

The state's plan comparison tool was useful for finding plans that our doctors are in-network for. Once I had it narrowed down that way, that tool helped me figure out that there is no significant difference between different companies' same-level plans in terms of co-pays and such.

So, after far too much work, I wanted to compare monthly premiums, which was more difficult than it should have been. I finally found that information, and it looks like the plan we have now is our best choice, but we'd stayed with that plan for a couple of years out of inertia.

Yes it could be worse: we have plausible options, and I think we'll be getting a tax credit that covers most of our premiums.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Oct. 13th, 2022 06:31 pm)
I saw the occupational therapist this afternoon. She therapist did ultrasound and massage, because there's still some muscle tightness. The therapist was very pleased that I'm not wearing the brace much, because I'm not finding it necessary, and that I've been doing the exercises I already have with the two-pound weight for all three exercises, 20-25 reps twice a day.

She did ultrasound and massage, because there's still some muscle tightness. She also measured my grip strength and how wide I can stretch, and those were better than the last time she measured them. So, I will continue to do the same exercises and stretches at home, and see her again next week.

I have appointments for next week, and then for November 2, 16, and 30th, which may be more appointments than I will need, and is one more than the insurance will cover this calendar year. However, it turns out that my copay is half of what they'd charge me privately/without insurance, and we can afford the difference.

Also, something weird, but not bad, about my insurance coverage for this: the receptionist told me today that they had been overcharging me by $5 visit, because that's the copay the insurance company's website told them to charge me, three months ago.

ETA: I hadn't done the three wrist exercises with weights before heading out this morning, so I did one set of each around 5:00, which was fine. I just tried another set of each, and the first was OK, but the second hurt when I did them with the two-pound weight, so I tried the one-pound, and that wasn't any better, so I'm stopping for tonight.
After some procrastinating, this afternoon I tried to make an appointment with the hand doctor (for my wrist). The first step was to check whether I needed a more formal referral than "Carmen said I should see Dr. Green," which is a question about health insurance rules.

After giving up on the Tufts Health Direct (our health insurance company)'s website, I called the company. The first thing I found out was that the insurance company's computer system had changed my primary care physician in January, to someone I've never heard of, for stupid bureaucratic reasons. The person I was talking to said that the company would send me a letter any time there was any sort of change to my coverage--so I checked on that, and they still had me listed at my previous address.

It was straightforward to officially change my PCP back to the person I've been seeing all along, and the man assured me that I wouldn't be getting billed for the (four) times I'd seen either Carmen or Andrea since January, because it's the doctor's responsibility to check insurance coverage. (They did check, they asked if there was any change, and I said no, because I hadn't changed plans and didn't know about this other change.)

I then called the hand doctor's office, and after a friendly message in four languages offering COVID information, the outgoing message pointed me at their website.

So, I told them that I want to see Dr. Green, what it's about, and that I'm not a new patient but this is a new problem. In theory, someone will be calling me back, hopefully this afternoon; if there's been nothing in a couple of days, I will call back.

I have made a bit of progress, but mostly solved a problem (or pair of problems) I hadn't known about until I called about the thing I knew I needed.
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