Because the pandemic is not over:

I just checked the extended expiration dates on our stock of at-home covid tests, and they are all still valid, fortunately.

I have labeled the boxes of tests with the new/extended dates, stacked them in order of expiration dates, and rubber-banded the boxes together.

That's six covid quick tests (3 boxes) plus one Lucira "PCR quality" test. That seems like a reasonable balance between having enough tests on hand that we (3 people) will be able to test when we want to, and not having to throw away expired tests.

Here's the FDA web page to check extended test expiration dates.
Two cryogenic zaps, about thirty second each, on the right place this time. (There have now been several correct and one only partly on the wart.)

The doctor told me to go back to using the salicylic acid patches, but be careful with the bandage tape, so as not to irritate the skin on that finger which is still dry and feels a bit rough.

Follow-up in two weeks, with Pam again because Andrea doesn't have in-person availability and this needs to be in person.

The doctor's office is no longer requiring masks, and the receptionists weren't wearing masks. So I told the person who checked me in to ask Andrea to wear a mask, which she did, which makes it lower-risk than the transit to and from the appointment, or the quick stops to buy meat and bread. There may have been one other customer in the meat market, and the only person at When Pigs Fly was the cashier. There are advantages to shopping at 10:30 on a Tuesday morning, though I would have preferred to be able to sleep late.

We now have ground lamb, which is defrosting in the refrigerator, and a rosemary foccacia.
I spent what felt like a lot of time over the last few days talking to the pharmacy, and my doctor's office, trying to figure out what the insurance company was doing with the Ritalin prescription this time, before finally managing to get it sorted out and picking it up on my way back from visiting my doctor for the wart treatment. I'm not going to try to explain what the insurance company was doing, or why, because that would require me understanding it; in the end my copay was less than I expected.

I spent a couple of hours in Davis Square, eating lunch and talking to my friend Elizabeth. Mr. Crepe no longer has any outdoor tables, but they're basically across the street from Davis Square, which does. That was fun, and we hit the sweet spot between too cold for people to enjoy sitting outside, and too hot for me to function well.

The doctor decided that the skin on my left index finger is sufficiently recovered that it was reasonable both to try freezing the wart, and that I can go back to using the salicylic acid pads. I was only able to tolerate about 15 seconds of zapping this time (instead of two 30-second zaps), which I hope means we're actually getting the cold on the wart. If the next round doesn't do it, they'll send me to a dermatologist.

Also, when I got to the doctor's office, I saw that the staff were all masked, as were about half the people in the (small) waiting room. After a couple of minutes, someone came around with disposable medical masks and told the unmasked patients to put them on. One person argued that that's no longer required, and was told "this is a private practice, we have different rules."

I thanked the person who was handing out the masks, and also mentioned this to Andrea, once I was in the exam room. She said they haven't decided what their policy will be in the future-, but assured me that not only can I keep masking regardless, but I can ask whoever is treating me to mask even if they decide not to require masks from either patients or staff. That's about as good as I think I'm going to get anywhere, and better than a lot of places.
We just got a portable carbon dioxide monitor, to use as a vague proxy for ventilation and covid risk.

I calibrated it this afternoon, at which point the air right outside our building was at 404 ppm CO2. We then put it on a bookshelf near the apartment door, hoping we'd notice it before heading out.

It turns out that baking chocolate chip cookies, and then having the oven door open long enough to remove two cookie trays, sent the air around the corner from the kitchen up to something like 1600 ppm. The device beeps once if it gets a reading above 1000 ppm, and beeps for a minute if it goes about 1500, unless you tell it to be quiet already. We're now trying a different shelf, further from the stove, but also easier to overlook on our way out.
I had my quarterly telemedicine appointment for Ritalin refills and whatever else is on my or the doctor's mind. This month the other things were:
  • me having fallen a couple of months ago, with a segue into my various balance exercises
  • the wart treatment, which seems to be going well -- taping the wart treatment pad on, as the other nurse practitioner advised, and then putting on a nitrile glove before showering, kept it from falling off my finger quickly
  • whether raw eggs are (reasonably) safe for me to eat, with a segue into our chocolate mousse recipe, which I offered to send her; and
  • a second opinion on what Dr AbdelRazek told me about eating in restaurants, since he hasn't answered my question about my risk if I do get sick. It turned out Carmen had started to look for that information before realizing that I'd sent the MyChart message to the neurologist rather than to her,. She mostly found the same things I mentioned having found, plus that there's an increased risk with Ocrevus (which I'm taking) but not other MS medications with a similar mechanism of actio, which is odd but not actionable.

Carmen also told me that she looked into convalescent plasma on my behalf, because it's being considered as a possibly useful treatment now that we've lost Evusheld and most of the other options, but she doesn't think it's currently being offered in the Boston area. She specifically asked Mass General, because they had been doing research into it early in the pandemic, and they no longer have it.

I couldn't trim the mousse recipe enough to fit into the character limit for a MyChart message, and the "attach files" option works for at least a dozen file types, all image files. So I saved the recipe as a PDF, attached it, and said that if it's not readable I'll mail her a hardcopy c/o her office.

This is Amy Thomson's "Easy Chocolate Mousse" from The Bakery Men Don't See, the first fundraising cookbook for what was then called the Tiptree Award (now the Otherwise).
Does anyone know of a Boston-area dentist whose staff are still masking consistently. I'm in Brighton, but willing to travel a bit, preferably by T.

I just called my dentist and asked about covid protocols, and the person said "covid protocols?" as if nobody had asked her that in ages. I explained I wanted to know what their rules about masking are, and was told "if you want to wear a mask you can." I said "thank you, I may need to reschedule" and hung up.

The receptionist called back (thinking we'd been cut off accidentally?), and said the doctors were masking, and the hygienist when I asked about that. However, the rest of the staff aren't, but "you can ask them to wear a mask" and "everyone is vaccinated."

The reception area/waiting room at that office is small, and by the time I asked anyone working there to put on a mask, they would have had several hours to spread any virus they happened to be carrying.

On the one hand, this is not good; on the other, would another medical practice be any better here?
My appointment is next Wednesday, so I have some time to brood think about this. I may call and ask to reschedule for the first appointment of the day (any day), to reduce possible exposure to other patients. Even if the staff are all vaccinated and boosted, it's unlikely that all the other patients are.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Mar. 2nd, 2023 05:54 pm)
This was a somewhat odd visit. The three previous times I saw Dr. AbdelRazek, they had me arrive half an hour early, so an assistant could do some low-tech neurology tests before I saw the doctor.

This visit, they had me arrive half an hour early, and the assistant took my vital signs and asked what medications I'm currently taking, then took me back to the waiting room until the doctor was ready. I had to ask him for the low-tech neurology tests, but when I said yes, I wanted him to do them, he sent someone into the exam room when he was done talking to me.

The doctor had started by asking me a few general questions about mood and activity. I told him that I'm still staying home a lot, because of Covid. He said he was surprised that I'm still doing that, and doesn't think I need to be. This surprised me.

He seemed to have two reasons for giving that advice. One is that he has "30 or 40" other patients on Ocrevus, who have reduced their precautions significant, and none of them have become seriously ill. The other is that, and I quote, "you have to live your life." What he advised was to keep masking indoors if I'm not eating or drinking, but he thinks I should eat in restaurants (the first example I gave of something I'm still not doing), and if I go to a party, mask most of the time, but it would be fine to take the mask off to eat or drink.

I'm not sure how much of my doctor saying "you have to live your life" is that, like a lot of people who say that, he is tired of the pandemic, and how much is that he's balancing mental health and depression against infection. But if it is a mental health thing, he could have been a lot clearer.

I miss in-person socializing, and if the three of us agree it's safe, I would like to have some friends visit, or go see other people. But eating in restaurants doesn't feel like a good use of our (notional) risk points.

Another small oddity: they had me fill out a questionnaire in the waiting room. It was mostly about my moods over the past two weeks, but they also asked about falls any time in the previous year. I said that "yes," I have been injured by a fall in the past twelve months, and nobody asked me about that.
I saw my doctor today, by telemedicine, and she thinks the level of precautions the three of us were taking last week is still reasonable, despite having lost Evusheld. Lost in this case means it's not useful against the most recent covid variants, including the one now dominant in New England.

So, as long as I keep wearing N95 masks everywhere indoors except at home, I can keep doing some of my own shopping, and riding the T to go places and do things that are low-enough risk while I'm there.

Based on that discussion I made a new appointment to see her in person in two weeks to have a wart removed. I'd meant to ask about museums, and will probably send her a query about that via MyChart.

* The drug I'm taking to hopefully prevent MS exacerbations takes out all B cells. I am vaccinated and boosted, and I hope that gave me enough T cells to do me some good, but I had no detectable covid antibodies two weeks after my third full dose of the mRNA vaccine.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Nov. 23rd, 2022 03:31 pm)
I just ordered a LOT of duckbill-style N95 masks from armbrustusa.com, taking advantage of a sale that someone mentioned on Ask a Manager a couple of weeks ago: Half off everything in November, with free shipping. cut by request, sorry I forgot until now. )
Today's lunch was a mushroom crepe, which I ate sitting at an outside table. I got to Mr. Crepe during a break in the rain, and it only rained for part of the time I was eating.

If not for the pandemic, I would have eaten indoors, and probably at a restaurant closer to my occupational therapist’s office. In 2022, I’m pleased to have safe, tasty options for lunch out.

Today is the equinox, and we're definitely getting into cooler weather, which will make outdoor dining less tempting, especially in damp clothes, but for now, I had a nice meal, at a place I like, with negligible covid risk (I was wearing an N95 mask when I went into the restaurant to order).

The OT session itself went pretty well: ultrasound and massage, and the therapist asked me how much exercise I'd been doing, what my pain levels have been, and how often I'm wearing the brace. She told me to increase the amount of time I'm not wearing the brace, and to try to increase the number of repetitions of the exercises I'm doing with weights.
The pandemic is not over. We can't just "declare victory and go home" (a misquote of a senator's suggestion for the Vietnam War*).

masking and the pandemic )

The reasoning is backwards, because the virus isn't the Ravenous Bugblatter Beast of Traal, and if the virus had anything resembling a point of view, I think it would be pleased to have potential hosts when you're playing cards.

*I know this is a misquote because I just googled to get the exact phrasing and attribution.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Sep. 9th, 2022 03:51 pm)
I had a bivalent covid booster a couple of hours ago, plus a flu vaccine since I was going to be at the pharmacy being vaccinated anyhow. Right arm for both, because I sleep on my back or left side.

I had a longer wait that I expected; apparently the appointment timing was thrown off because the pharmacy had fewer people working there this morning than they expected. So far, I am feeling OK even though I climbed some stairs I wasn't expecting. I'd somehow thought that the only Green Line station that wasn't accessible was Boylston Street (which probably never will be); Hynes isn't accessible either, and the backs of my thighs were already sore.

However, I had a sweet potato pastry (so labeled, from the French bakery part of HMart) before being vaccinated, and onion soup, good tea, and a hot fudge sundae afterward. I'm feeling OK so far, a couple of hours after being jabbed.

I think the pastry was vegetarian; the soup definitely was. The server asked if I wanted the soup vegan, even though I had just asked for dairy milk for my tea. This was at Veggie Galaxy, which along with the entirely vegetarian menu has a nice patio, and is between the drugstore where I was being vaccinated and Toscanini's Ice Cream.

Between the pandemic and geography, I hadn't been back to the Central Square branch of Tosci's since it reopened; it looks very much like I remembered. I had raspberry-blackberry ice cream in my hot fudge sundae, since sweet cream wasn't on offer, and bought a pint of orange ice cream with chocolate chunks to take home.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Jul. 3rd, 2022 02:44 pm)
I am staying home from a party/barbecue that I wanted to go to, because it's just too hot outside for me (87F/31C). This has been the shape of almost all my recent summers, is unlikely to change barring weird* medical advances, and not being able to outdoors on hot days interacts really badly with sensible covid precautions.

This particular symptom interacts badly with sensible covid precautions, and it reminds me of other ways the MS is a limitation, and I Do Not Like This. We may be going out to dinner with [personal profile] adrian_turtle's other partner and some of his family next weekend. I really hope next Saturday is cooler, or at least that Saturday evening is cooler than this afternoon.

Given the intersection of MS symptoms and covid precautions, it may be time to look into cooling vests again. Air conditioning works at home, but people enjoying air conditioned restaurants or shops usually don't want any of the windows opened, for obvious reasons.

*"Weird" medical advances because one of my MS drugs had the really excellent side effect of giving me back my heat tolerance. Unfortunately, it would have been too risky for me to stay on it for more than 18 months, and "improved heat tolerance" isn't something they're actively looking for in the disease-modifying agents [sic] for MS, so it wasn't listed as a medication effect or possible side effect. Maybe there's another MS drug with that side effect, but I suspect I won't find out except by chance. [Having written that, I am going to try to formulate a useful search phrase.]

Given
Adrian got up early because the movers were arriving at her old apartment before 8 a.m., and [personal profile] cattitude got up a bit early so he could get to the new place before the movers (and before Adrian). I had lunch at home and then went to the new apartment, via the Copley Square farmers market: this meant I wasn't in either apartment at the same time as the movers.

The farmers market had strawberries. I bought a quart, which the three of us have eaten (after bread and pickled herring). There were three different vendors with strawberries. The berries at the place closest to the entrance were pale and I think had been picked to early. The second vendor's strawberries looked a lot better, and smelled nice. The bought a quart because that basket looked better than any of the pints.

We decided in the middle of the afternoon that we wanted to get an air purifier right away rather than waiting. Cattitude found one on Amazon for a reasonable price that was available for delivery between five and ten p.m. today, and ordered it. He and I stayed at the new place after dinner, until the package arrived. Cattitude brought it inside and carried it to Adrian's bedroom, and then we took a Lyft home.

Unfortunately, there were significantly more unmasked passengers on the subway (red and green lines) than on the bus, but I kept my N95 mask on except when I was at the farmers market, which is outdoors.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Apr. 28th, 2022 02:16 pm)
I just went to the optician and ordered a pair of computer-distance glasses, in part because [personal profile] rysmiel has been talking so positively about theirs. I had a prescription from my last eye doctor appointment, in October; I asked for a copy mostly in case I lost or broke my current pair of glasses. So I had a prescription for the kind of bifocals I'm wearing now, for distance and close work, not for computer distance.

Ron looked at the prescription and told me he would have to adjust it for the computer distance. This led to me ordering a pair of bifocals, with the top half for computer distance and the bottom for closer work. That's not what I was thinking of, but when Ron suggested it I decided that it was a good idea.

I like Ron, and am planning to keep getting my glasses from him until he retires, hopefully not soon. He's been in business for half a century; it's a one-man shop, with a sign that has his name and the word "optician."

From there, I went across the street to La Victoria Taqueria, bought a taco al pastor, and ate it sitting at a metal picnic table outside. It's a chilly day, but I haven't been to that restaurant in ages, and wanted to take advantage of being in Arlington Center at lunchtime.
I had my twice-a-year Ocrevus infusion this morning. They took blood to run some tests my neurologist wanted: the MtAuburn labs and MyChart are efficient. They took the blood around 9:00, and the first results were available at 9:45. My Vitamin D levels are excellent! 71.1 ng/mL, with the "good" range being 30-100. My neurologist was aiming to get it up from about 35 to 50 because they think there's a connection between Vitamin D and MS. Note: a couple of years ago the "reference range" was being given as 20-100; if you were at the low end of normal by that standard, they may now consider you to be deficient in vitamin D even if the actual number hasn't changed.

Also, the Transit app is now asking: do you think the bus stop is accessible? how crowded is your bus? did the bus arrive when you expected, or significantly early or late? and whether the other passengers are masking. For my bus home, the answers were yes, accessible; somewhat crowded; about when I expected (for the revised arrival time, but there's no room to be that specific); almost everyone was masking. (I took a Lyft to the hospital, because an 8:30 appointment would have put me pn a rush hour bus, and with little slack if a bu trips was cancelled.) I wore my boat-style N95 mask for about several hours, removing and restoring it a few times to eat, and twice to take pills. I continue to be pleased with these masks.
I just made a carefully timed trip to Harvard Square, mostly to buy ice cream, and also to get dry-mouth spray at the CVS in Harvard Square. [I prefer the CVS/Bartell's generic to the Biotene it's a generic of, because the generic is less minty.]

Carefully timed: there were very few other passengers on the 73 bus, in either direction. I walked to the back and opened some of the bus windows, in addition to the ones that were already open.

discussion of masking by other people )
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Apr. 6th, 2022 02:46 pm)
I got a call from my neurologist's office this morning, following up on my question from a couple of weeks ago: they said the monoclonal antibodies took a week or two to reach maximum effectiveness, and were good for three to six months.

The first half of that answer would have been more useful two weeks ago, of course. For planning purposes, the relevant part now is that three to six months from when I got the antibodies puts me somewhere between the middle of June and the middle of September, and I guess we can see about getting me another dose in September.
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