redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( May. 8th, 2025 05:30 pm)
I had a colonoscopy this afternoon. The preparation was not fun, though not as bad as I'd feared; the main problem is that I am short on sleep. The worst part of the colonoscopy was the nurse placing an IV, because I was dehydrated (as expected in this context), and what would otherwise have been the best location is bruised from having blood drawn Monday.

I already have results back via MyChart, and since the colonoscopy was done by GI doctor who recommended I get one, I know she has the information. It looks basically OK--no evidence of inflammation and no polyps--but they did detect internal hemorrhoids. She "randomly" biopsied eight locations, so they can look for microscopic colitis, and I will probably have those results in about two weeks. The recommendation is to wait for the pathology report and then see her again.

ETA: Also, I had to take my N95 off for the colonoscopy, because it was done under sedation. The sedative was given via IV, but they had a tube feeding oxygen into my nostrils, and the anesthesiologist needs to be able to see that the patient is continuing to breathe properly. I gave them the mask when I lay down, and they gave it back to me (in a zip-lock bag) when I woke up.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Mar. 30th, 2025 02:52 pm)
Adrian got back from Ohio late last night, and was very tired. She'd been in Columbus for her uncle's funeral, and to support her aunt and cousins.

This trip involved unmasked dining in restaurants, so we are all three masking at least through tonight, while I/we think about whether that's long enough, assuming a negative covid test tomorrow morning and no relevant symptoms. "Relevant" is fuzzy here, between her existing medical stuff and exhaustion from travel. (Obviously, a positive test would mean a call to her doctor.)

We discussed covid risks before she left, and the tradeoff between that and wanting to provide emotional support. She, Cattitude, and I are generally in agreement on levels of precaution here, and part of that is what to do if/when exposure is necessary.

I am going to post this and then use the iota carrageenan nasal spray, which is some protection against airborne viruses taking hold. The spray is by no means perfect, but it's useful either when I can't mask (e.g. dental work) or as part of the Swiss cheese model of protection.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Feb. 19th, 2025 06:38 pm)
Today's visit was longer than I expected, but hardly unpleasant at all.

I was there for them to take impressions of my teeth, so they can make the dental implants and bridge. I expected it to be very unpleasant, because at last spring's visit to make the temporary "flapper" (which never did get comfortable), it took three tries before they got a usable impression.

I mentioned this up front, and they did the first two (out of three) impressions with a smaller tray for the modeling material. It also helped that this modeling stuff hardens faster than the one from last time, so I didn't have to carefully hold still for as long after biting into it.

It will probably take the lab six to eight weeks to make the implants and bridge, and they'll call me to make an appointment once they know.

This is going to be expensive. The paperwork they had me sign for this, after warnings about possible complications, said that I'd been given the chance to discuss what it would cost. So I asked the dental assistant, who said she'd have to go get the dentist; he in turn had the receptionist call my insurance company. The answer is that it will probably be between six and eight thousand dollars, which Vitaly said is a major discount from $12,000-$16,000. They had me pay $4,000 today, and will contact me when they hear back from the insurance company. I called Aetna a few weeks ago, on Adrian's behalf, to ask about coverage for implants, and the agent told me they're not covered at all. (She and I happen to have the same health and dental insurance, so I could call and give them my own membership number rather than saying I was calling on her behalf.)

ETA: There is of course no way to do this masked, but there were very few other people at the dentist's office, and the dentist and his assistant were both masked. I put on a fresh N95 mask, and used the Betadine iota carrageenan nasal spray, before leaving the house today, and am hoping those protect me from covid, flu, and whatever else might be going around.
We had company yesterday: Alan and Jeanne, who are visiting from California, and Elly, who they are staying with. Alan is one of my oldest friends; I met him at a party in [personal profile] roadnotes' apartment in 1983 (so, more than 40 years ago). I've known Elly almost as long, and she lived next door to us for several years; I've "only" known Jeanne for about half that long.

We had the party with food, and without masks: everyone took covid tests Saturday morning, and we opened one kitchen and one living room window for ventilation with a bit of a cross-breeze, and ran two air purifiers. (Normally, one of them sits in Adrian's room.)

Good conversation, about a variety of topics, some more serious than others--some life catch-up, which included both health and health health insurance, and random other topics including travel, cats, memorably bad weather, and geography, both natural and the built environment (mostly streets and street names, not fanous or unusual buildings).

Molly was delighted by the open window, and by attention from more people.

We had pizza delivered for dinner, from Veggie Crust. At Elly's suggestion, we tried the portobello mushroom pizza with pistachio pesto. The pesto tasted mostly of basil, but it's a good combination, which we may get again.

Adrian baked chocolate chip pumpkin bread, and Elly made a custard pie. The pie is very rich, and I realized a few minutes after our friends left that the pie was still in our fridge. I'm not even going to try to finish it, because it's very rich (neither Cattitude nor Adrian can eat it, because there's a lot of cream in the custard).

[We have spent today quietly at home, by ourselves, because even the best socializing can be tiring.]
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Nov. 14th, 2024 06:24 pm)
I have been to the dentist, and had my teeth cleaned by a new-to-me hygienist. This was a less intense cleaning than I'd been getting from the previous hygienist in that location, but the hygienist found a gap in my gum large enough that she strongly recommended an antibiotic. I could tell that she was used to having to talk people into the antibiotic, as well as into letting her apply fluoride paint for their gums. I didn't need persuading, just to check that the antibiotic they use isn't something I'm allergic to. (It's tetracycline, placed on/in the gum in question.) The hygienist also praised me more than once for being a good patient, and for flossing regularly. I'm not supposed to floss that area of my mouth for ten days, but that was the only specific instruction.

I saw her at 1:00, an inconvenient time (given that I don't live near the office) that they rescheduled my appointment to. Follow-up in four months (rather than 3), at 2:30 on March 17th, so it will be easy to eat lunch first, even if it's not good weather for eating outdoors. Today, I took the bus to Harvard Square and went to Pokeworks; it seemed like the best option, given that I wasn't supposed to eat or drink anything hot for two hours after the fluoride treatment.

Other differences, some larger than others: my next cleaning will be four months out, rather than three, which was their idea rather than mine. The hygienist didn't give me mouthwash and tell me to swirl it around for a minute before spitting it out (I do not miss that bit of covid precaution at all). She was wearing a procedure mask, rather than the previous hygienist's N95, and se offered me one to wear home, saying it was a good mask because it's three-ply; I declined, saying I like my N95s. I alsp had to ask her to pull her mask back up over her nose and mouth at one point while she was explaining something about the fluoride. I think she was going to point at her own teeth to show me where she'd placed the fluoride, but I asked for written/printed instructions instead. And, the hygienist asked me to pick a flavor of toothpaste, rather than just using mint, so I asked for cherry.
Adrian and I are planning to be seeing a friend of hers, outdoors in the friend's backyard, this afternoon. Crystal is even more covid-cautious than we are, so we both took covid tests this morning, which were negative, as expected.

The thing about having bronchiectasis is that yes, that cough isn't anything contagious, but also I might not notice if I was coughing for some other reason.

I'm going to use the iota carrageenan nasal spray before I leave, because it might help and won't do any harm.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Sep. 26th, 2024 06:18 pm)
The steroid is helping, and I was boticeably better today than yesterday, but "better" doesn't equal either "well" or "as good as six weeks ago." details, mostly for my reference )

That's how I'm doing 36 hours (2 40-mg doses) into the five-day steroid pulse, with three still to come. Also two days of the doxycycline, which is a seven-day prescription.

I have now talked to the nurse at the Beth Israel MS clinic. First she told me that the steroids might benefit me for as much as a couple of years, which is good to know. Then she said something about masking while on the steroids, because "never went away, we just started ignoring it," and told me that half their in-patient beds at Beth Israel are still being occupied by covid patients. I assured her that I am still masking almost everywhere I can, because I know that. It's good to have another clinician who isn't pretending that covid doesn't matter, since all too many are. (The fact that not only are a lot of doctors ignoring covid, some of them are actively telling people not to mask, is another part of why I'm still going over to Somerville to see Carmen.)
I saw my pulmonologist this morning, for a routine follow-up appointment. She is happy with how my lungs sounded, and the plan is (a) another CT scan and then follow-up appointment in April, (b) she asked about my plans for fall vaccines, and said I should get an RSV vaccine as well as the flu and covid vaccines, but I should wait two weeks after finishing the steroids before getting any vaccinations; and (c) she sent me home with a sputum cup, for a sample in case the gunk I am coughing up with the help of the flutter vavle gets darker, thicker, or otherwise seems icky (my term, not hers).

I was surprised that Dr. Koster took one look at me and asked about the cane, because she remembered that I wasn't using one in March. Also, when they checked vitals, my blood pressure was a bit high (no surpise, given the context of medical appointment), and blood oxygen lower than I'd like at 93. (Since I started paying attention in 2020, it had been reliably 97-99 until a few months ago.

I started the antibiotic first thing this morning, and the steroid about an hour later. I was already moving better by the time we got to the doctor, which suggests that one or both of the steroid and the doxycycline is working faster than I expected. We took a Lyft both ways, and by the time I got out of the car again at this end, I felt like I should sit down right away, less because I was in a lot of pain than because standing and walking were starting to hurt again.

As a side note, the communicable disease screening part of checking in online for my appointment is back to asking about recent travel, and they've added more symptoms to the checklist, but I still had to ask the doctor to put on a mask. However, when I asked, she said "my pleasure" and stepped outside to get one, rather than arguing with me, so it could be worse.

Update, six hours later: my legs and hips are definitely feeling better, and I am consciously reminding myself not to restart All the Things right away. So, I have done a bit more walking around the apartment, but with the cane, and one (one) carefully selected PT exercise that I do standing up, but with a little support, and I would have stopped immediately if it had started to hurt.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Aug. 29th, 2024 06:39 pm)

On the advice of several people, I decided I wanted to try an antiviral nasal spray containing iota carrageenan. I’m thinking both an extra layer of protection, along with masking and an air purifier, and as some protection in situations where I can’t mask, like the dentist or while going through airport security.

The FDA hasn’t approved it for sale in the US, but it’s readily available in Canada. So, I asked rysmiel to buy me some.

I tried it this morning, to confirm that I wouldn’t find it unpleasant, then bought two more bottles to take home with me.

I still masked on the bus and in the mall, of course. The only thing I was able to test was that it wouldn’t bother me, not how much good it will do.

I took a covid test this morning, and it was unsurprisingly but reassuringly negative.

I tested because I had dental surgery on Tuesday, and that felt inherently risky. I was less worried about covid exposure by the time I left the dentist's pffice than I had been before I got there, because the dentist and his assistant were masked, and I only saw a couple of other people while I was there, but testing was still the right idea.

Also: I used the flutter valve this morning, after skipping it for a couple of days around the dental surgery. The post-operative instruction sheet said not to exercise for two or three days. I rested yesterday, and PT and a walk this afternoon/evening seem plausible, as does waiting until tomorrow.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Jun. 21st, 2024 02:15 pm)
I just learned that they are closing my current dental office (which is in Watertown Square) in about a month. They're suggesting patients either go to Westborough, which is out past 495, or a Gentle Dental in Belmont, but my current dentist will be working entirely in Westborough. I can get to the Belmont office about as easily as to the Watertown one, but it looks like I'm changing dentists anyway, and am looking for suggestions.

I'm in Brighton, near the ends of the B and C branches of the green line, and being reachable by transit is more important than distance in miles as the crow flies.

I want somewhere that still takes some level of covid precautions (masking, air filtering, and/or good ventilation), and that won't have a problem with me only masking in the dental chair.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Jun. 18th, 2024 06:10 pm)
We got home from Scintillation, a small SF/fantasy convention in Montreal, yesterday afternoon. I enjoyed the con, but it took a lot out of me, and I'm not sure I enjoyed myself enough to be worth how draining it was (that's separate from the financial cost, three round-trip airfares and four nights in a hotel). If I go next year, I suspect I should either travel Thursday instead of Friday, or leave Sunday afternoon/evening rather than staying over Sunday night. The longer trip let us go to the pre-con and after-con picnics, plus Friday afternoon expeditions, and as much of the programming as we wanted.

I enjoyed some programming, and some unorganized socializing in the convention's public spaces. I skipped some programming, either because it was less interesting to me (e.g. discussions of writing techniqques) or to save energy. I got a ride to the Marche Jean Talon expedition on Friday from [personal profile] rushthatspeaks, and a ride to the Sunday evening picnic from Ruthanna. I didn't feel up to walking to Marche Jean Talon, and then walking around at the market; similarly, I didn't feel up to taking the metro to the Sunday evening picnic. (We did take a bus and the metro back from the picnic to the hotel Sunday night.)

We went to Frites Alors! with Tamara for lunch on Sunday, because I wanted poutine, and they have food Adrian likes (although not poutine, because it's full of cheese). By Monday, when we were grabbing something to eat on the way to the airport, I felt like I had eaten too much meat (in the form of dumplings) and just got a cucumber salad. We took the metro to get to the branch of Frites Alors! that has a (seasonal) patio; the convention hotel is in Chinatown, and most of the outdoor dining options near the hotel mean getting takeout and finding a park bench. That said, I'm glad that there's still at least one con that has some outdoor events, and requires masking indoors with a couple of exceptions.

[I may post more, but wanted to get at least this down before I forgot.]
Update on Covid booster vaccines for this coming fall, in the US and probably Canada:

On Thursday, the FDA changed its recommendation to COVID vaccine manufacturers telling them to use KP.2 for the Fall 2024 vaccine formulas instead of JN.1 if possible. This makes a lot of sense since KP.2 [JN.1 + F456L + R346T mutations] is expected to protect better against all of the newer variants that contain F456L mutations. Basing the vaccines on an older variant (JN.1) would not be expected to protect against the newer variants as well. Moderna and Pfizer will be able to change their vaccine formula to use the KP.2 antigen because of the agility of mRNA vaccines.

Novavax will supply JN.1 protein-based vaccines because those take at least 6 months to make. Novavax put out a statement that they hope to have their JN.1 COVID vaccine available in pre-filled syringes for US distribution by mid-July. They also stated that in non-human primates, their JN.1 vaccine provided good protection against KP.2 and KP.3 in animals that had received the XBB.1.5 vaccine previously.

(Copied from Ruth Ann Crystal's Covid News and More newsletter)
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( May. 17th, 2024 04:45 pm)
When I sent [personal profile] anne my annual "hi, would you like to go look at lilacs together?" email this year, she said she wasn't up for that much exertion, because she is still dealing with Long Covid. Instead, she suggested we get together outdoors somewhere and just talk for a while.

Anne, Adrian, Cattitude, and I were all free this afternoon. We met at the Public Garden, then walked a couple of blocks to a boring public courtyard that has tables and movable chairs, stopping long enough for me to buy a cup of soft ice cream from a Mr. Softee truck, something I hadn't done for years before the pandemic.

The conversation was part catching up, and part just rambling. It had been too long since we got together. When Anne started thinking that she might be running low on energy, we decided that would be a good time to stop. But today was the first Copley Square farmers market of 2024, and we were halfway between Copley and Arlington on the Green Line, so we went to the market.

It's early, so there wasn't much in the way of fresh vegetables, but we bought Macoun and Mutsu apples from one stall, and a small Concord loaf from Hi-Rise Bakery.

That makes three times I have socialized in person in less than two weeks, which is a lot by my current standards. The weather was excellent Tuesday and a little cool for sitting outdoors today. I hope to take advantage of the good weather some more before it starts being too hot for me to be comfortable.

Anne is being more covid-cautious than I, Cattitude, and Adrian, including keeping her N95 mask on outdoors. When we realized this, Cattitude asked if we should put our masks back on, and Anne said she didn't need us to.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( May. 6th, 2024 06:27 pm)
Cattitude, Adrian, and I went to [personal profile] supergee, Bernadette, and [personal profile] womzilla's wedding/anniversary celebration at the Bronx Zoo yesterday. We had fun, but the trip itself was tiring: Lyft to South Station, Amtrak to New Rochelle, then a cab to a hotel in Yonkers and a Lyft to the Bronx. We stayed overnight, and took a late-morning train home.

I had a good time, and saw several people in person for the first time in years, and I think a few I wasn't even in email or social media touch with. Supergee had to participate over Zoom, because he is in a hospital, but fortunately not sick enough that they needed to cancel/reschedule the wedding.

The plan had been to have most of the event outdoors: the ceremony itself, and some of the socializing+food part of the evening. It turned out that between the weather (rainy and low 50s F) and the move to Zoom for the ceremony, the entire event was indoors. Based on what Bernadette had said a week or so ahead of time about ventilation, air filters, and UV, we decided to take the hopefully slight risk of unmasking indoors for a couple of hours of food and conversation, rather than eating something quickly and then remasking. This feels a little odd because if the event hadn't originally been planned to be outdoors, I probably wouldn't have gone; I have turned down a lot of indoor events in the last few years.

Even so, I spent a lot of time masked yesterday and today, enough that the skin right behind my ears was feeling a little tender earlier. (I'm using N-95s, which fasten behind my head rather than having earloops, but the behind-the-head straps tend to slip down and run into the ear-pieces of my glasses.)
Here is a case report on someone in Germany who was vaccinated against covid 217 times. At some point after the public prosecutor decided not to file fraud charges, a team of researchers asked to study him, and he agreed.

Tests of blood and saliva samples found that his adaptive immune responses were larger than in a control group of people who had three doses of the covid vaccine. He reported no side effects from the vaccines, and there's no evidence of breakthrough covid infections. The paper says that they don't know whether the many extra vaccine doses are why he didn't get sick, and "Importantly, we do not endorse hypervaccination as a strategy to enhance adaptive immunity."

If the man in question told anyone why he wanted to be vaccinated so many times, it's not in this paper.
!markdown

An interesting angle on discussions of long covid, from [personal profile] rezendi:


Relatedly I have come across a truly bizarre pair of articles about long COVID that kind of encapsulates the debate?

* April 2023: 'You're less likely to get long COVID after a second infection than a first' from NPR, cites a study from late 2022 and quotes its lead investigator saying: "Undeniably, we are seeing very, very clearly that for the second infection the risk is lower than the first infection."

* September 2023: 'Does the risk of getting long Covid increase each time you get reinfected?' from STAT news also cites a study and quotes its lead investigator saying: "What we found is really undeniable: It’s very clear in our data that reinfection contributes additional risk of long Covid."


The catch? It's the same study and the same lead investigator.

(Both of these things can be and are true at the same time, but people are obviously going to take very different things away from those two articles. Throughout this pandemic the public health communication has been just mindblowingly inconsistent.)
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Dec. 26th, 2023 05:22 pm)
I just bought a couple of rapid tests at the supermarket pharmacy, because we were down to the last two tests we got for free, and I want to keep more tests on hand than people who live here.

I think I can get some rapid tests free from the city government, but I need to make calls to confirm hours etc. That's Boston-specific, but I don't know if they're going to ask for proof of residence (or even if the program is running anymore).
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