redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Jan. 2nd, 2025 07:55 pm)
I've spent what felt like most of the day on phone calls about medical-adjacent subjects, much of it related to insurance and billing rather than actually about medical care, and I'm still waiting for calls back from CVS and the nurse at the Beth Israel MS Clinic. This feels like invisible labor, in part because it's mostly about getting past stupid artificial obstacles: having changed health insurance means needing to get my MS drug from a different mail-order pharmacy, and the person at Aetna said that this isn't something that can be handled by transferring the prescription from the current pharmacy. That's why I have a call in to the MS nurse.

I'm also waiting to hear back from CVS about how to tell them I've changed insurance. Every time I call about anything, they urge me to download their app, but it's not set up for this. Neither is the website. I suspect this has to be done in person, which probably means giving Adrian my new insurance card, so she can pick up my prescriptions.

I sometimes fill prescriptions through Capsule, which is delivery-only, and that app just needed me to upload photos of both sides of my insurance card. CVS also has a phone app, which ought to be able to do the same.

Around and after all of those annoyances, I did a bunch of PT. Not only is it good for me, it felt like I had accomplished something. It's repetitive--I've been doing basically the same PT exercises for years--but it doesn't involve arbitrary hurdles that are designed to make people go away.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Nov. 9th, 2024 03:03 pm)
I have now received from Aetna, in order, a SilverScripts card (prescription drug coverage only), followed by a letter saying that they couldn't process my request for enrollment in a Medicare Advantage plan for 2025, and now a Medicare Advantage card that was printed on Nov. 1, 2024.

I called Aetna two days ago, after receiving the letter saying there was a problem with the enrollment. I think the 2025 plan application is now sorted out, but I should call Medicare and ask what they know about my 2024 and 2025 coverage.
I went to REI today in search of a fall-weight jacket. I now have a jacket that will do, but that I am not delighted by, so I may try another store or two next week. The new jacket's fit is OK but not great, and it's black, so it can easily get lost among all the other black coats in that closet. I also bought a pair of gloves; again not great, but I've given up on finding gloves I actually like.

My retroactive disability benefits were deposited in my bank account a couple of days ago. It's more than I expected, because I'd forgotten that the lawyer gets a percentage "or $7200, whichever is less," so instead of 25% he got about 15%.

I'm spending a bunch of time looking up different Medicare Part D (prescription drug) plans. cut for length )

My next project is to compare the available "Medicare Advantage" plans. The disadvantages of those plans are that they limit my choice of doctors, and require referrals for some doctors. Possible advantages are that I think I'd have a smaller copay per visit, that this may be the only way to get them to keep covering telemedicine appointments with my regular doctor, and one or more of those plans may cover something else I would use. Basic Medicare will stop covering telemedicine for most people at the end of 2024 (the exceptions are a few specific medical conditions I don't have, and people living in rural areas).
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Oct. 12th, 2024 09:39 pm)
The Social Security Administration has just told me how much they will be giving me every month, and also that I have been enrolled in Medicare, covarage starting May 2024. So, the Medicare covarage is retroactive to a few months before they ruled in my favor.

Also, the monthly benefit is more than I was expecting them to award me, which is also good news.

There are things I need to look into, and do, about this, but I'm not going to do them at this hour of the day. I think it involves a call to the lawyer.
I got a message today saying that my "submission status has changed." I logged into the site, and found:

.
3. An Administrative Law Judge completed reviewing your appeal on September 27, 2024.
4. On September 27, 2024, a representative in BOSTON MASSACHUSETTS started a final review to make sure that you still meet the non-medical requirements for Disability Benefits.

A Social Security Representative may contact you directly if we need any additional documents or information to help determine if you are eligible.

Please respond timely to any requests from SSA:
Notify us whenever a change occurs that could affect your benefits. Not reporting changes timely may delay the processing of your appeal.

How to submit additional documents:


You may mail any evidence you have to the following address:

SOCIAL SECURITY
ROOM 148
10 CAUSEWAY STREET
BOSTON, MA 02222-1098

Therefore, the plan for Monday is "call the lawyer, ask what that means and whether I need to do anything if they don't contact me directly.
I got a letter yesterday, dated August 2nd, saying they have received my request for reconsideration, and to contact them if any of the following are incorrect:

I am making this request; I am submitting additional evidence; and I am represented by Lindsay Rand, who is an attorney.

I logged in to their site to see what "additional evidence" they are referring to, and it looks like there is no additional evidence, but I should probably check with the lawyer and/or the agent assigned to my case. [personal profile] cattitude thinks I should call the lawyer, tell him I got this letter, and ask him what if anything I should do about it.

The letter also means that they have my correct address. I don't know whether they updated that when they got the request for reconsideration, or they already had it and my first rejection letter is lost in the mail.
This morning, Rep. Pressley's office sent me a PDF of the denial letter.

With that in hand, I sent messages to two law firms that handle denials of social security disability applications and are in or near Boston.

One of the lawyers called me back at about a quarter of two this afternoon. I talked to him, and then he sent me forms to sign and send back, authorizing him to act on my behalf about my disability claim; giving permission for him to see medical records that would otherwise be protected by HIPAA; and agreeing that if the appeal succeeds, he will be paid a percentage of any back benefits.

Then he called me back, and asked me a bunch of questions about my medications, doctors, and what if anything had changed since I filed the application, and used those to file the appeal online.

So, I can stop worrying about that 60-day deadline.

The next step is that the agency will assign a new examiner. Then they will send me more forms to fill out, and send the lawyer copies of everything because I have designated him as my representative. I figure that part of what I would be paying for is persistence: he won't get discouraged by delays or bad news, and he doesn't have executive function issues to interfere with getting things done. (For unsuccessful appeals, all the can charge is "reasonable" costs, determined by the agency, not the law firm.)
Thanks to my congresswoman's office, I now have (a PDF of) the letter saying that Social Security is denying my application for disability benefits. That is dated June 6th. The only thing that's clear about reasons (beyond that they turn down a lot of people) is that they couldn't reach the psychiatrist I was seeing for three years. However, it took me about three minutes this morning to find a phone number for her at the VA hospital, so I can provide that information.

I sent messages to two attorneys who handle this sort of case in the Boston area, and hope to hear back from one of them in the next day or so.

ETA: One of them has already called me back about an hour ago. He will be sending me paperwork so I can designate him as my representative, and other paperwork so he can talk to my doctors. He has an office in Braintree, but when I said I'd rather do a video appointment, he said we could do that or over the telephone, so we will schedule a call or zoom or something.

Also, looking at it again, they not only didn't find Dr. Segal, I don't know whether they talked to my current neurologist. It says they got information from "Mt Auburn neurology" and from one previous neurologist, Dr. Katz.
I'm still waiting for the letter explaining their decision, which was promised on June 7th.

So, I used the contact form on Congresswoman Ayanna Pressley's official website yesterday to ask for help with Social Security, saying that what I need right now is to get that letter, because I'm looking at a deadline for appealing. I got an answer in about an hour, from a staffer who said they would work on this for me, and will get in touch when they have more information. The email went into just enough detail that they clearly read my message and know what I needed, it's not a generic "thank you for contacting us about social security."

I've used Pressley's website (and my previous representatives) several times, to send messages asking them to support or oppose some legislation, or thank them for something they've done or said. This is the first time I've asked for help with a federal agency, but I knew it was there.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Jul. 14th, 2023 11:19 am)
It has been more than a month since I got email saying that my application for disability benefits had been rejected, and an explanation would be coming in the mail*. I have not received an explanation, or any other mail from them. I have now left two phone messages with the person at their office who was assigned to my case, asking how I can appeal the rejection without having received that paperwork.

So far, my contact hasn't answered. There's a 60-day window for appealing the decision. I'm not sure of the right thing to do here. Things that have occurred to me: (a) look for a lawyer to help; (b) file an appeal online to avoid missing the deadline, even though the first page of that process implies that I should have answers to what they have; (c) ask my congresswoman's office for help.

Does anyone know a Massachusetts lawyer or organization that helps with this, or have other suggestions?

*What I actually got was an email saying "we have made a decision, log in to see it" and that got me the bare-bones answer.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Feb. 3rd, 2023 01:09 pm)
I finished the "activities of daily living" questionnaire yesterday afternoon, and [personal profile] cattitude stayed up late last night to finish his questionnaire about me. [personal profile] adrian_turtle girded her loins, went out into the cold, and mailed them at the post office this morning.

I am still, or again, feeling stressed, but at least there's nothing I need to do about this for a while, so it doesn't matter if I'm a bit distracted for a day or three.

I did call the person at their office after lunch, and left a message telling her that we had mailed back all the forms either yesterday or this morning, because it might help and can't hurt.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Feb. 2nd, 2023 01:23 pm)
I am now a naturalized German citizen.

I went to the consulate this morning, where I signed a form and was told some things of varying usefulness, then, and now have the official naturalization certificate. The things I was told include that if I want to visit Germany I will need to get a German passport, that from now on they will be dealing with me entirely in German and it would be a good idea to learn some, and the much less important fact Germans write dates day-month-year. The man who was explaining this pointed at the paperwork, and realized that today isn't a useful example, being 2/2. The paperwork he gave me included a couple of pages about German data protection law: he said "we feel strongly about this" and I told him I agree with them. (I think I can file that mentally as "the GDPR applies.")

The man also gave me a lapel pin with the German and American flags, as appropriate to a dual citizen.

I came home, had lunch, and played Scrabble with [personal profile] cattitude. And now I am going to dive back into the Social Security disability questionnaire.
I have completed the "work history" forms, and will mail that tomorrow. I'm partway through a first draft of the more complicated and emotionally strenuous one that asks what I can do, what I can't do anymore, and so on. They overlap, because this one asks about how my condition affects my ability to work.

First draft because while there are a few straightforward questions (who do you live with? do you drive?) there are a lot more like "do you prepare meals? how frequently? how long does it take" and "what do you do all day?"

Today's mail had a letter telling me that they'd sent the previous large envelopes, and asking me to call and let them know whether I want to add any medical providers (yes) and when am I going to return the forms? I left a message, asking the "disability examiner" to call me back. I hope to be able to tell her something like "I'm going to send this one back today, and hope to send the other tomorrow. My new psychiatrist is $name, at the same number as you had for my previous psychiatrist, and she has access to the previous doctor's charts."

Also, I had to cross out and re-write some things on the "work history" form because I'd put the numbers on the wrong lines. This despite doing a first draft on my computer, because that's not something I first-drafted. On the other hand, one of the things I'm telling them is that I make more mistakes than I used to...
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Dec. 7th, 2022 07:09 pm)
I just spent a frustratingly long time trying to figure out what health insurance plan we should buy (Massachusetts, via HealthConnector). The hard part was finding out how much different companies would charge us for what looks like essentially the same level of coverage. I know I'm not eligible for MassHealth, that's not what I was asking it, but I had a lot of trouble finding the information I wanted.

The state's plan comparison tool was useful for finding plans that our doctors are in-network for. Once I had it narrowed down that way, that tool helped me figure out that there is no significant difference between different companies' same-level plans in terms of co-pays and such.

So, after far too much work, I wanted to compare monthly premiums, which was more difficult than it should have been. I finally found that information, and it looks like the plan we have now is our best choice, but we'd stayed with that plan for a couple of years out of inertia.

Yes it could be worse: we have plausible options, and I think we'll be getting a tax credit that covers most of our premiums.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Mar. 27th, 2021 02:07 pm)
This feels a little weird, but:

Germany will restore the citizenship of people who were deprived of German citizenship by the Nazis, and give citizenship to those people's descendants (mostly Jewish* Holocaust survivors and their descendants). That used to be only the children of German fathers, but sometime last year they changed that, and I stumbled across an article about it a few weeks ago.

I don't speak German, and don't want to move to Germany, but it would be an EU passport, and after the last few years, that feels like valuable insurance.

The German government's website has a form to use for "restoration of citizenship." They explicitly say that you don't have to use the form, but that it will help them find the records to prove eligibility.

I'm putting together a list of documents and information that I'm going to be asking my mother for. I'm also going to want help from someone who speaks German--the form is in German, and must be filled out in German, and Google translate is fine for "what's the German for January?" but not for things that need a little context. In particular, do they want every change of address, or is "I lived in New York City from the time I was born until 1985" sufficient?
I have pre-ordered tomato and cucumber plants for next spring, from GrowJoy, the company I got my cucumbers from this year. I will be getting Paul Robeson and Yellow Brandywine tomatoes, plus one cherry tomato plant and some cucumber plants that they recommend for container gardening. I jumped on this as soon as they opened for pre-orders, not just because I had trouble finding plants last spring, but because Paul Robeson and Yellow Brandywine are heirloom varieties that I learned about in Washington, which I haven't seen in Boston-area farmers markets.

I have been vaccinated against the flu. I made an appointment after breakfast, for 1:30 this afternoon, and everything went smoothly. They had appointments available throughout the day; I got to CVS a little early, checked in, and at 1:30 a man called my name, told me that the injection site might be a little sore for a day or two, and vaccinated me. I'd filled out the relevant forms online, when I made the appointment, so he didn't have to ask much besides confirming that he had the right person.

We now have a topographic map of the immediate area on our study wall. I ordered it from the US Geological Survey a few weeks ago, it arrived last week, and this afternoon [personal profile] cattitude got out the blue-tack and a level and put it up.

After some annoying back-and-forth, I have confirmed with the Registry of Motor Vehicles that if I renew my "REALID" state ID card between now and the end of the state of emergency, it will cost $25 instead of $50. I don't know if they'll make me go to an RMV office at some point in the future when that's safe again. (The flyer they sent me was unclear, and the website didn't help, so I sent an email rather than spending $25 now and possibly being charged another $50 later. And then I sent another email, quoting chunks of their flyer to be very clear about what I wanted to know, because the first reply hadn't answered my question.) I will fill out the forms, and give them the $25, tomorrow.

After looking at the latest color-coded state COVID map, with the red blotch at the north end of Middlesex County, I made another donation to Bread and Roses Lawrence. I first donated to them a couple of years ago, after the gas explosion up there, and yes, that's partly because of the name.

I did a bit more text-banking today, mostly following up on conversations started by other people hours or days earlier. It's more congenial work: still at least 85% variations on "STOP" and "take me off your list," but also the chance to answer a few more interesting questions, like the dates for Ohio early voting and (on Slack) what "I'm PEV all the way" meant: that's the Arizona Permanent Early Voting List, which I knew about from phone-banking in August urging people to get on that list. Now they're sending out texts asking people whether they are planning to vote by mail, in person early, or in person on Election Day.
I got a letter a few days ago saying that we owe the IRS money, implying that they hadn't received my electronic payment last month. This despite both my bank's records and their system confirming the payment had been made in December.

I called about it yesterday, and after several minutes of touching numbers on my phone screen, got to a point where it was ignoring my choice (which was from the list of acceptable choices).

I gave up, called back today, and got the same loop. Called a third time, picked a different plausible piece of that phone tree, and the system told me that I have a balance of zero (as of February 2, 2020, which seems a little odd, but I can live with that bit of oddity).

So, all is now resolved, after an annoying waste of time and some stress--a letter from the IRS that can be summarized as "you owe us money even though you used the payment method we recommended" is worrying.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Aug. 27th, 2019 10:00 am)
I have dealt with the RMV bureaucracy, and now have a paper temporary ID while I wait for the plastic card to arrive in the mail ("about ten days"). The clerk looked at, and then kept, my previous ID, with the Somerville address; fortunately, I did the COA when we moved from Arlington to Somerville online, so I have that card and put it in my wallet when I got home.

The whole thing took longer than I expected, partly because the MBTA website had actively confusing directions, so I spent an annoying amount of time wandering around Watertown Square before I found the correct bus stop, long enough that I decided to stop for lunch before getting on the bus. (It didn't help that both ends of the 70 bus route are "Central Square," one in Cambridge and the other in Waltham.)

Once at the MBTA, it was mostly tedious: they check paperwork first, and hand out numbers like "S-64" or "M-45," and then announce "now serving M-50 at window 11." There are enough lines, moving fast enough, to produce frequent announcements, which is good but made it hard to read while I waited.

When I got to the counter, the clerk suggested I wait until November, because "there's no rush" and it would be cheaper. Getting a new ID card because of a change of address (with or without "real ID") costs $25, as do renewals without moving (or, I think, getting a new "real ID" card without moving), but a renewal with change of address costs $25, not $50. My ID expires on my birthday in 2020, about 15 months from now, and a COA less than a year before the expiration date would count as a renewal, which this doesn't. I told him I still wanted to do it, which was as much because of the amount of time I'd already put in as because I want to have this before I renew my passport.

After my previous post, thinking about the amount of paperwork they're demanding for this, I realized something odd: it looks as though someone could get a "real ID" using the name and paperwork of a family member or housemate. The RMV will accept the combination of an official birth certificate, social security card, utility bill, and W-2 form, all of which someone might have at home where a friend, relative, or even burglar could find them. However, they won't accept a current US passport (which is proof of both identity and "right of residence" in the US), plus a utility bill and credit card statement, even though they can and did check online that the social security number I gave them goes with my name.

Because it's not about protecting individuals from identity theft, it's about more about making it harder for people to get ID--the new federally-imposed requirement for two different kinds of proof of address makes that pretty clear.
One of the umpteen moving-related things [personal profile] cattitude and I are doing is going to the Registry of Motor Vehicles to get ID with our current address (and move our voter registrations to Belmont).

I decided to get the "Real ID" version of the state ID, because I want a wallet-sized ID that I can use to get onto domestic flights. (When I renew my passport I will probably spend the extra money for a passport card, for similar reasons.)

According to the instructions on the RMV website, in order to get a "real" ID (which implies that they also issue fake IDs) you need to supply three things: a "lawful presence" document (such as a passport, birth certificate, or green card); proof of your social security number; and proof of Massachusetts residency (such as a recent utility or credit card bill, or a jury duty summons, or professional license).

The RMV wants people to fill out the forms online, then come to their offices to show them the paperwork.

So, I filled out the form, which surprised me by demanding two of the proof-of-residency documents. Fine, they can have the electric bill and a credit card statement. Cattitude was going to come with me tomorrow, but he doesn't yet have two such documents, because he gets a lot of his bills online. (Knowing the RMV would want these things on paper is part of why I'm getting paper utility bills.)

At this rate, they will turn me away because I didn't bring a goat to sacrifice.
[personal profile] siderea points out the large hidden costs of all the forms doctors and patients are now required to fill out, and suggests a way of pushing back against those requirements, by making them visible.
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