I finished the steroids yesterday, and am feeling significantly better than the first day or so. I'm trying to do things slowly, so I'm not sure whether I'm doing as well now as a month ago.

I have gone back to more of my PT exercises, including the ones that I can't do sitting down. Most recently, the "single-leg balance" exercise. However, the back of my left thigh is now feeling a little sore.

I'm still carrying the cane around the apartment, and trying not to stand around for no reason when I can sit, but I haven't used the cane for support yet today.

Carmen called a little while ago, to see how I was doing. I told her, asked about vaccine timing, and then realized after I got off the phone that I did have more questions.

What she told me:

Yes, two weeks after stopping the steroid would be a plausible (earliest) date for vaccination. She advised against getting the covid and RSV vaccines at the same time, so my tentative plan is to get the covid and flu vaccines in mid-October, then wait three or four weeks for the RSV vaccine. She recommended the Novavax vaccine, though that recomendation is mostly because of fewer side effects, for people who got bad side effects from the mRNA vaccines.

She didn't have advice on whether I should still be extra-careful about exposure to covid and other infections, she hadn't thought about that until I asked.

So I called Pamela, the nurse at the MS clinic. She said that I should try to avoid sick people for a month or so, and wear a mask if I can't do that. In practice I think that means resuming my normal level of caution (N-95 mask), and maybe hold off on getting my teeth cleaned.* Pamela also said that any vaccination is more likely to be effective if I wait three or four weeks instead of two, but I may not want to wait that long for a flu vaccine.

What I thought of after the call: do I still need to avoid NSAIDs, and if so, for how long? Similarly, is it OK to resume taking the Yuvafem (estradiol) on Wednesday (i.e. return to my regular schedule)? I sent a MyChart message asking about those things.

* I don't currently have an appointment for a cleaning. I need to find out (a) do they even do that at the dentist's office on Beacon Street? (b) if not, is the dentist really going to be seeing people in Watertown Square again? And (c) is it feasible to go to Belmont and see my usual hygienist, without transferring my other care to Gentle Dental? If at all possible, I'm sticking with the current dentist until we're done with the implants.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Sep. 26th, 2024 06:18 pm)
The steroid is helping, and I was boticeably better today than yesterday, but "better" doesn't equal either "well" or "as good as six weeks ago." details, mostly for my reference )

That's how I'm doing 36 hours (2 40-mg doses) into the five-day steroid pulse, with three still to come. Also two days of the doxycycline, which is a seven-day prescription.

I have now talked to the nurse at the Beth Israel MS clinic. First she told me that the steroids might benefit me for as much as a couple of years, which is good to know. Then she said something about masking while on the steroids, because "never went away, we just started ignoring it," and told me that half their in-patient beds at Beth Israel are still being occupied by covid patients. I assured her that I am still masking almost everywhere I can, because I know that. It's good to have another clinician who isn't pretending that covid doesn't matter, since all too many are. (The fact that not only are a lot of doctors ignoring covid, some of them are actively telling people not to mask, is another part of why I'm still going over to Somerville to see Carmen.)
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redbird: closeup of me drinking tea, in a friend's kitchen (Default)
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