Also, yesterday I went to shul with Adrian to say kaddish for my mother. Most of the service, including the singing, was in Hebrew, but I felt more of a connection there, I think because I was in a room full of people, not looking at boxes in a Zoom window.
Also, yesterday I went to shul with Adrian to say kaddish for my mother. Most of the service, including the singing, was in Hebrew, but I felt more of a connection there, I think because I was in a room full of people, not looking at boxes in a Zoom window.
In no particular order:
*Last night, I talked with
cattitude and
adrian_turtle about possible text for my mother's gravestone. I emailed this to my brother today, with a note that these were what I was thinking of.
*I went to TJ Maxx to look for slippers. Disappointingly, there were none that came close to fitting: the ones that might have been in my size were all significantly too tight across the top of my foot. I was wearing thin socks (specifically, lightweight compression socks). It continues to be annoying that not buying slippers (for example) is as tiring as buying some.
*Also, my hips started hurting while I was in the store, so I decided not to look for other things, but headed home with only a quick stop at CVS, and not a grocery store.
*Today was definitely a good day to be outside; yesterday wasn't particularly, and tomorrow is likely to be a lot colder than today (with an afternoon high a little below freezing, so not horrible for January in Boston).
*I got email today from state senator Pat Jehlen, about a bill to ban the use of masks by law enforcement. This is noteworthy because I haven't lived in her district since 2019, and didn't think I was still on her mailing list.
*The skin on my fingertips, and on the rest of my hands, is doing a lot better. I will need to remember to keep applying the serious lotion, so it doesn't start splitting again. However, my shoulder is bothering me, which may be from doing a lot of mousing when I was avoiding using the keyboard.
The delivery pharmacy somehow got the wrong dosage of one of my prescriptions. This is annoying partly because I noticed the problem, told them, and we both contacted my doctor. (The prescription is 1/day, and they filled it as half a pill every day.) I thought we'd agreed that they would hold off until one of us heard back from her, and I took delivery yesterday because I thought they were bringing the other thing I'd ordered. So now I have to contact Carmen again, and figure out what to do here.
After several days of looking at Medicare open enrollment stuff, I sent an email this afternoon to the state-funded office that provides free advice on the subject, asking for an appointment. The questions are, roughly, do I want Medicare Advantage next year, or do I want basic Medicare, a separate (Part D) drug plan, and a Medigap policy. My existing Medicare Advantage plan isn't being offered next year, so I have options, but also have to decide something.
We have, however, heard back from the handyman/moving guy, and arranged for him to take the air conditioners out of our windows, and also bring more things from the storage unit. He took just long enough to get back to us that Adrian was trying to find someone else to do the job, but I'm glad we don't have to.
We reached a point yesterday that I could be satisfied just packing everything the three of us have decided to take--photos, the gorgeous candlesticks Mom left to Adrian (officially to me, but she had discussed them with Acrian), and a few other small mementoes, but there's a stack of paper that Mark wants to take a second look at: he was looking for financial paperwork as well as photos and other mementoes. It felt like it might be 45 minutes more work today, but could take three times as long if we had tried to push through last night.
I told Cattitude and Adrian to go out and play yesterday, so they spent the afternoon at Kew Gardens. It is raining steadily now, and forecast to do so for several hours. I'm thinking I want to not do much today, just finish the tasks here, and maybe go out and do something interesting tomorrow, before leaving for Boston on Monday.
I am very glad we saw
A couple of my old friends showed up, including Elly Freeman, who lived in the apartment next door to ours in New York for a while, and Elizabeth Stone and her twin brother Larry, who I went to college with. There were also several havniks, including two or three I don't know, who showed up because I needed a minyan.
Ruth, who was leading the service, kindly slowed down enough that I could say kaddish, reading the transliterated Aramaic from the prayerbook. Last Thursday, at my mother's flat, I couldn't get out even a syllable of the Aramaic, and I kept falling behind the rabbi.
It was comforting in ways that the other wasn't. I'm not sure how much of that was that I knew more of the people, and how much was because they were there for me to say kaddish: my mother's rabbi was there so my brother could say kaddish, and didn't think it was important for me to.
Adrian and I talked about my mother--Adrian first, because when asked to tell people about her, I drew a blank, because there's so much, and I didn't know where to start.
After the service, my friends stayed to talk for a bit, about my mother and also about the ways grief had felt for them. Some of them would have stayed longer if we'd wanted, but I was starting to feel chilly and had a vague awareness that we'd want dinner at some point.
Holocaust Educational Trust: Eve Kugler BEM 1931 – 2025
Jewish News: "She lit up every room"
OPINION: How Eve Kugler changed the world
Please pass the word to anyone who might want to know, who might not see it here.
Since a couple of people asked about this: the plan is to start the service when we get a minyan, and do either the afternoon or the evening service, as appropriate.
My mother's cause of death was metastatic lung cancer; she'd been short of breath for a while but kept insisting nothing was really wrong. Then she fainted on her way to see her doctor on April 14, and her carer and one of her good friends decided to take her to the emergency room instead.
I wish I'd traveled sooner, but last Wednesday Mom told me that I shouldn't come right away, but wait until she was home from the hospital to visit because hospitals are boring. At that point they knew it was cancer, but were talking in terms of weeks or months, and what treatments to consider. Saturday morning (4/19) my brother said we should get there as soon as possible, and we were on a red-eye flight to London that evening. By the time I got there, my mother was a lot weaker, and not up for much in the way of conversation, but she was happy to see me, Adrian, and Cattitude. On the 21st the palliative care team said we should think about whether to send her home or to hospice. Mom wanted to go home, but said that she wanted whichever would get her out of the hospital sooner. Tuesday they told us "24 hours" and that she was too sick to be taken home or to a hospice facility. She died at 2:30 Wednesday morning, with my brother and his partner Linza sitting with her.
Sitting shiva is supposed to be people coming to comfort the mourners. That's part of what happened last night, and it was valuable, but Mom's stepson Ralph asked if Mark or I would be willing to sit on Sunday as well, for the same of my mother's friends from March of the Living (a Holocaust memorial that Mom had been participating in since 2012) could pay a call, and I didn't feel up to that. I wanted to be home, in my own bed, and have my friends comfort me, not listen to more people I've never met tell me how wonderful my mother was. The group had a memorial service for her Wednesday night in Cracow, which was before the funeral.
My mother referred to Holocaust education as her "third career"; she volunteered once to talk about her and her family's experience, and the next time they needed a speaker they asked her again, and she saw work that needed doing and put a lot of time and attention into it. [Put in a link to one of the online obituaries?]
I'm leaning on Adrian for guidance on how some of this can/should work, given that this needs to work for me, her, and Cattitude. Formally, my brother and I are the mourners, but Cattitude and Adrian both love and miss my mother, and she loved them. (Apparently several people who heard her talk about the three of us said things like "Eve was very...open-minded," which is true but misses that my mother loved them both.)
We got to London in time to see her for a couple of days, but by the time she got there she was too weak, and in too much pain, for much conversation. We kept telling her that we loved her, and the last thing my mother said to me was "I love you."
The funeral was yesterday, in London. My brother and I sat shiva at Mom's flat last night, and then Cattitude, Adrian and I fled for home early this morning. At the funeral, and then last night, people kept telling us how wonderful and energetic and important she was.
More later, but I wanted to post something now.
There are treatment options for the cancer, but they know it's not curable: the goal is to get my mother more time, and make her more comfortable for however long that is. Mom definitely wants to fight this.
The immediate problem is that there's fluid around my mother's lungs. The pulmonologist described the problem, and said there are two possibilities for dealing with that, and he will come back tomorrow and ask Mom for a decision. Given the hospital schedule and what the choices are, if the first doesn't work she can have them do the other.
The pulmonologist doesn't think the oncologist will want to start treatment until after the fluid is drained, but the cardiologist will also be back tomorrow.
Given all this, I'm not planning to travel before Saturday [three days from now], and Sunday or Monday might be better in terms of both having my and my brother's visits overlap, and giving Mom company for longer. Mark will call me again once they talk to the specialists, to fill me in and maybe discuss travel plans based on what they learn. and decide, tomorrow. In the short term, knowing we're not traveling immediately is helping the three of ust deal with logistics like what to make for dinner, and Adrian picking up a prescription. It also means Cattitude can try to decompress a little, and wait until tomorrow to do laundry.
The other open question is how long I will want to stay in London. One possibility is that the three of us are all there there for a few days, after which they fly back to Boston and I stay longer.
A CT scan found lung cancer, in both lungs. They're still waiting to talk to an oncologist, and my brother is on his way to London now. The three of us will be going to London in a few days, possibly as soon as Thursday, or maybe Saturday. My brother has a long layover in Charlotte, and is going to spend part of it looking at airline tickets for us, possibly using my mother's frequent flier miles for one or more tickets.
I spent some time this morning looking up travel-related things that we may not need, but will do no harm, and wondering about Oyster cards is better than doomscrolling. I also called my doctor's office and asked whether there were limits on where the patient can be for a telemedicine appointment. The receptionist said she thought that technically, I have to be in Massachusetts; we agreed that I can call back if I need to postpone that.
My gut was bothering me earlier, which is almost certainly from anxiety, but still has me a little nervous about this trip. (It's been just over a week since I saw the GI doctor.)
We went to the supermarket, and bought ingredients for Passover-suitable lunches that we can make ahead of time. This morning/early afternoon was difficult because I slept later than usual, and Adrian and Cattitude got up later than that, and we didn't have plans for lunch, or useful leftovers.
That was on top of worrying about both my mother and the world situation. I was expecting to hear from my mother or brother by this afternoon, and haven't. I realize that bad news would be, and be treated as, more urgent than good or ambiguous, but I still worry. The time zone difference doesn't help any (it's five hours later in London than here).
I'm not jumping on a plane tonight, but I will likely be going to London soon, with Cattitude and Adrian. Even if she's feeling a lot better by Tuesday, I haven't seen her in a while, and want to. Mark is probably flying to London in a few days, in any case, even though she visited him for Mardi Gras.
I've done some planning and preparation: we all three have valid passports, and I now a UK Electronic Travel Authorization, which they started requiring a few weeks ago. It took me about 20 minutes to apply, much of that spent repeatedly trying to get their iPhone app to read the RFID chip in my passport, and about two minutes for them to approve it. So I can visit the UK anytime in the next two years, as frequently as I like.
I emailed our catsitter yesterday, and said that I might need them soon but I didn't know how soon, and she assured me someone would be available. (The person I talked to has a small team of cat-sitters.)
Fortunately, the very simple instructions the GI specialist gave me on Monday seem to have resolved my problem (I've been fine since Monday afternoon). Thank goodness for that last-minute appointment.
[more later, probably]
I did mention that whatever the eye doctor does or doesn't do tomorrow morning, the appointment a couple of weeks earlier was vastly reassuring, because the doctor was able to tell me that I do not have either glaucoma or macular degeneration. I wasn't particularly or specifically worried about either of those, but "it could be A or B, and they're both fairly minor" is good news. ( eyes )
It was a good visit, but
My mother got here Saturday evening, and Adrian met her at the airport, and they took a cab home. We had soup for dinner, made the day before so we could eat when my mother got here. After supper, my mother was doing a little unpacking, and realized she'd left a backpack in the taxi.
( cut for length )
( masking )
I got mail saying that my health insurance company has approved four more occupational therapy sessions, between now and the end of December. Right now, it feels like that will be enough.
After talking with Mom I went for a walk with
I got mail saying that my health insurance company has approved four more occupational therapy sessions, between now and the end of December. Right now, it feels like that will be enough. I continue to improve, despite not having seen the therapist last week; not seeing her last week means I got no ultrasound or massage, as well as no changes to the exercises I was doing.
My left arm seems to have recovered, which I'm noting here because I noted when I'd resumed the exercises with the putty. I'll probably keep doing those a bit longer, just in case.
In between, we mostly just talked, in varying combinations of people -- at least once, I wandered into the living room and found my mother,
This was a short visit, because we expected to still be somewhat frazzled from the move; her being here for only two days made sense because my mother was combining seeing us here, and my brother in New Orleans, with attending a wedding in Niagara Falls (postponed from 2020). We all want the next visit to be longer, but we will figure out how long, and when, sometime after everyone has caught their breath.
There is, or was, some inflammation and scarring of the lung, and she will be having periodic check-ups, just in case.
Also, she fell some weeks ago, while she was in Krakow (doing Holocaust education work). The doctor they called in at the time said nothing was broken; in the course of the biopsy they discovered hairline fractures, and those are all healing naturally and the pain is now minimal.
So, once again, my mother is basically in good health, not just "good health for her age." Both her parents also lived into their nineties, mostly in good heath, which is encouraging.
It was a very good visit, though I am somewhat tired, and
On Wednesday, I got notarized photocopies of my birth certificate and passport, to accompany my (re)naturalization application. Most of the questions were straightforward, but she had me email one of her oldest friends to ask the name of the town where my mother and her family lived in France in 1939-40. There are also a couple of questions where we decided the right answer is for my mother to go to the German embassy in London with the not-quite-completed form and ask them what to put there--including at what point in the Nazi regime my mother and her family lost their citizenship.