redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Oct. 24th, 2022 04:38 pm)
I got an email from my mother this morning, with the subject line "Charity donation."

It wasn't a scam: my mother gave a talk about the Holocaust to a college in the Berkshires (via Zoom), and they wanted make a donation in her honor to the charity of her choice. My mother asked me for suggestions, and specifically for an MS or get out the vote charity. I sent her information about the https://miracoalition.org/, which I did voter registration work for before the pandemic, and she she is forwarding my message with a note about her daughter who lives in Massachusetts.



I had another dose of Evusheld this afternoon, and waited around for an hour in case of side effects. There weren't any, so when my one-hour timer went off, I got up and left. I made a side trip to Belmont for olives; the 73 arrived before the 71, so I took that, but I would probably have done better on Mt. Auburn Street in Watertown.
I saw my neurologist (Dr. AbdelRazek) today for my semi-annual checkup, and one of the things we discussed was vaccines. He thinks I should get most vaccines, because T cells exist, but doesn't think I should bother with the flu vaccine, because that one isn't very effective in people who aren't taking medication that knocks out their B cells. I didn't ask about the omicron booster specifically, because I didn't think of it: I was asking about a second dose of Evusheld, and whether there's an MS medication that is as effective as the one I'm on now, and doesn't interfere with vaccines. [There is one, Tysabri, which I have already taken as many doses of as I can safely have in my lifetime.]

I told him I'd been tested for anti-covid T cells, and the test found that I do have some, and he was surprised and interested, because he hadn't heard about that test. I used MyChart to send him a link to the faq page for that test, and he thanked me.

He is going to look into a second dose of Evusheld; as far as he knows, the FDA emergency use authorization for that is for only one dose per patient.

I asked the doctor to write a new gabapentin prescription, for the dose I'm actually taking; he did, and Capsule will be delivering it this evening. I told him that yes, at that dosage it works very well, meaning I only have leg spasms occasionally and they are much milder than at the lower dosage.

He says I am clinically stable, based partly on the low-tech neurology, things like moving pegs in and out of slots, walking 25 feet, and having a light shined in my eyes, and partly on my answers to his questions. He is putting in an order for an MRI, head only, no contrast; Mt. Auburn radiology will contact me to schedule that, and if I don't hear from him within a week after the MRI, that means it's good news. My next MRI will be head, cervical spine, and thoracic spine, probably with contrast.

He think my previous doctor's diagnosis of pseudo-bulbar affect was correct, even though I didn't respond to the drug that's commonly used for that (Nudexa). He said the mechanism of action of mirtazapine, the antidepressant Dr. Segal prescribed along with the bubropion, is similar to Nudexa's. This doesn't seem to have any clinical relevance--the treatment I'm on is working pretty well--but I'm noting it here anyway.

[as usual, this is partly for my later reference]
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
( Jul. 14th, 2022 06:04 pm)
I had a physical exam this afternoon, which included a few things the doctor couldn't do remotely, like a manual breast exam and a check of the skin on my back for any growths or discoloration (she found no problem with either). The follow-up in 3 months will be telemedicine, because there's no reason for it not to be.

The weather was unexpectedly mild, so I had lunch in Davis Square before I saw the doctor, at one of Mr. Crepe's little outdoor tables. After the physical, I took the bus up Highland Avenue for cheesecake at 7Ate9, and then another bus the bus to Lechmere, in part to see what the new/rebuilt green line station is like. It is impressive, but there should be clearer signs explaining where to get your fare validated. Fare validation uses the fare sale machines, which then print a little receipt. The receipt was familiar from doing much the same thing on some Seattle and New York City bus lines. I had expected separate machines on the train platform (as at the Seattle and New York bus stops). However, the elevators at the new station work well, and I had no trouble finding a T employee to ask for help. This is a snazzy new station, replacing an odd and run-down old one.

ETA, for my reference: Carmen said that if I was exposed to someone with an active case of covid, she might be able to get me another dose of the Evusheld in less than six months. No details, she said it was something she'd heard on the "Ask a Virologist" podcast.
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redbird: closeup of me drinking tea, in a friend's kitchen (Default)
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