redbird: closeup of a white-and-purple violet (violet)
2025-05-18 08:47 pm

walk

I went for a walk this afternoon with Cattitude and Adrian: downhill to Beacon Street, then inbound as far as the Summit Avenue T stop. Not only was it useful exercise, I got to smell one of my favorite flowers, rugosa roses. It may have been too long a walk, because my joints were feeling the strain before I turned back and took the trolley partway home, but if I'd turned back any sooner I'd have missed the roses. While I took the T home, Cattitude and Adrian continued to Coolidge Corner, to shop for groceries and then get bagels. (Most of the time, the two of them can walk further than I can.)

I had to walk a few blocks uphill from the T to get home, but I allowed for that when I decided how far to walk. I came home, took my shoes off, and sat a while before I put on the shoes that I'm still breaking in. I will probably break them in a little more before I wear them outside.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
2025-05-17 12:56 am

shoes

I went to the New Balance factory store today* and, with the help of two salespeople, found a pair of shoes that I think fits. I bought it, then treated myself to a hot fudge sundae before coming home.

By the time I got home my feet hurt, which is from either trying on shoes that didn't fit, or the amount of walking I did in my old shoes. I will wear these around the house for a few days to break them in and confirm that they fit.

If they fit, I'm going to go back and buy another pair in a different color; if not, I'll return them, regretfully. I also want to see about sandals, and have a few stores in mind, but shoe shopping is so often frustrating that I wasn't going to try a second shoe store today.

*meaning Friday, which is yesterday by the computer clock.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
2025-05-14 01:58 pm
Entry tags:

CT scan looks fine

I had a CT scan of my lungs this morning, then saw the pulmonologist. The CT scan looks OK, considering: "Again seen is diffuse bronchiectasis with tree-in-bud opacities seen in the right upper lobe, right middle lobe and lingula. The areas in the right upper lobe may have improved in the interval."

The low-tech exam was also reassuring: the doctor used a stethoscope to listen to my chest, and had me cough while listening. She heard no wheezing (or other problems), which is good. So, she told me to keep using the flutter valve twice a day, and come back in six months.

And, some non-medical notes:

I discovered that it's possible to accidentally cancel a Lyft ride by putting your phone in your pocket after the driver has picked you up. The driver suggested I text Lyft to tell them I hadn't meant to cancel, but I couldn't figure out how to do that. After a minute or two of frustration, I asked the driver if he would take cash instead, and he said yes. So I handed him $25, and repeated the destination address so he could enter it in his GPS. I try to carry some cash on general principles, but this isn't something I was expecting to need, or be able, to pay cash for.

Mount Auburn was also having some trouble with their medical information system: the doctor could see the CT scan, but only on the machine in her office, not the one in the exam room. Fortunately, I didn't need to see the images. Given their computer problems, I was particularly pleased to have a list of my current medications on my phone, to show the doctor's assistant. I don't yet have my follow-up appointment, but that's not because of today's computer problems, but that they aren't set up to book follow-up appointments that far in advance.

I took transit home, which is cheap and makes sense to me, from many years of practice. I stopped at Flour to get something to eat, 7-11 to use their no-fee ATM to withdraw some more cash, and CVS to pick up a prescription, and was home in time for lunch. It was effectively two stops rather than three, because the 7-11 and drugstore are both near the bus stop where I was changing from the bus to the trolley.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
2025-05-08 05:30 pm

colonoscopy

I had a colonoscopy this afternoon. The preparation was not fun, though not as bad as I'd feared; the main problem is that I am short on sleep. The worst part of the colonoscopy was the nurse placing an IV, because I was dehydrated (as expected in this context), and what would otherwise have been the best location is bruised from having blood drawn Monday.

I already have results back via MyChart, and since the colonoscopy was done by GI doctor who recommended I get one, I know she has the information. It looks basically OK--no evidence of inflammation and no polyps--but they did detect internal hemorrhoids. She "randomly" biopsied eight locations, so they can look for microscopic colitis, and I will probably have those results in about two weeks. The recommendation is to wait for the pathology report and then see her again.

ETA: Also, I had to take my N95 off for the colonoscopy, because it was done under sedation. The sedative was given via IV, but they had a tube feeding oxygen into my nostrils, and the anesthesiologist needs to be able to see that the patient is continuing to breathe properly. I gave them the mask when I lay down, and they gave it back to me (in a zip-lock bag) when I woke up.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
2025-05-05 03:24 pm
Entry tags:

Medical: saw the neurologist

I had a routine follow-up visit with my neurologist today, and it was in fact routine. The closest it got to surprising is that the doctor had a little trouble seeing my old MRIs, taken at Mount Auburn. But once I told her that they were from Mt. Auburn, and her office had told me they'd take care of having them sent, she knew where to look.

Last month's MRI found no evidence of an active MS lesion, or anything else bad, and it's basically the same as the one a year earlier. They drew some bloo for tests including B cell levels, immunoglobins, ferritin, and the usual CBC and differential. Follow-up appointment in six months, when Dr. Sloane wants to discuss lowering the gabapentin dose; we're saving that question for (when I exoect to have less going on than I do right now.

My appointment was mostly with a Dr. Azuma, who said she's a fellow at the hospital, rather than Dr. Sloane. At the end of the visit I asked if she was going to be staying at the clinic after she finishes her training, and she said yes; I asked because I liked her. I noticed that she had a separate badge saying "my pronouns are she/her/hers" attached to her hospital nametag; given *gestures at world*, it seemed like a good sign that the hospital is OK with that.

Next up, colonoscopy on Thursday. I called to ask them a few questions about things like what I can eat as part of the low-fiber diet today and tomorrow, and one about the paperwork, and got voicemail, so in the meantime I am erring on the side of caution. However, I wound up looking at MyChart, and saw that it gives the date for the colonoscopy, but not the time, and the time I remembered didn't match what I had in Google calendar. I did find that date in an email they sent me two weeks ago, which is reassuring, but definitely something I want to ask about ASAP, because the prep instructions include something to be done six hours before the procedure.

Addendum: I got through to the GI doctor's office, and got answers to my questions about the low-fiber diet and the paperwork--but it turns out that the answer to when I should stop the Imodium is, last Thursday. So I'm waiting for a call back to find out whether I need to reschedule the procedure, but will be following the low-fiber diet tonight and tomorrow morning, and not taking either Imodium or the fiber supplement until I hear back from the doctor's office.

I'm seeing the lung doctor a week after that, also a routine follow-up.

5/6: Just heard back from the GI doctor's office, who told me "I just spoke to Dr. Morgan, and she said it's fine that you took the imodium." So, continue the low-fat diet today (I have a bowl of plain yogurt here), and liquid diet tomorrow, as planned.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
2025-05-04 05:58 pm

lilacs

I took the bus to Cambridge today to visit some lilacs near Harvard Square. These lilacs are in the front yards of several houses near Mount Auburn Street (on Ash Street and Story Road), not the impressive collection at the Arnold Arboretum, but they're much closer to transit. There was enough rain yesterday and today to wash away some of the pleasant lilac scent, but there was enough to enjoy when I leaned over to smell the flowers. Most of the flowers on those lilac bushes were already open this afternoon, and they're forecasting more rain for each of the next several days, so this may have been my best chance (especially given my upcoming medical appointments), though I may look for more lilacs near my apartment tomorrow or Tuesday.

I stopped on my way home at Lizzy's to replenish my supply of ice cream. I wasn't thinking about ice cream until Adrian reminded me this morning to take the insulated bag with me, so I'm glad she mentioned it. (Ice cream without nuts, seeds, or pieces of fruit is on the list of things I can have as part of the pre-colonoscopy low-fiber diet tomorrow and Tuesday.) or I might have bought a pint of strawberry or ginger.)
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
2025-05-02 07:27 pm

three or four things make a post

A day or two ago, I was reminding myself that there's no wrong way to feel, no "proper" shape of grief. Today, well, I'm feeling calmer than I had been: not cheerful, but I really wouldn't expect to me. Even if I wasn't mourning, I still have the assortment of health issues, one of them depression, and the state of the world continues to feel dire.

In response to my post about Mom's death, one of my high school friends expressed sympathy and said that she remembered that my mother was always kind. This seems worth noting because Dawn hadn't seen my mother in at least 40 years.

We took the cats to the vet for their annual checkup today: the vet did a basic physical exam, and drew blood for tests. They have improved the feline rabies vaccine, and it's now good for three years. So, having had the vaccine a bit over a year ago, they're fine for a while. Kaja's teeth continue to be a problem, and they're probably going to have to extract at least three. Kaja's bloodwork is necessary before they do that, and Molly's is just in case, because we're pay for annual memberships for both cats, which cover routine bloodwork, among other things.

I'm seeing my neurologist on Monday, for what I hope will be a routine appointment, and will be having a colonoscopy on Thursday. That will involve a couple of days of a low-fiber diet, followed by one day of clear liquids only, and then a strong laxative that they call the colonoscopy prep. They gave me an afternoon appointment, which I think means I can get a few hours sleep Wednesday night, then get up in the middle of the night to drink that stuff, rather than expecting to be up all night.

This feels like a busy week, in part because we had to reschedule the trip to the vet. (We've only been home from London for a week.) I'm sleeping surprisingly well, going to bed, turning the light out almost immediately and falling asleep quickly, rather than reading for at least half an hour and then lying awake a while after I turn the light out.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
2025-04-29 06:19 pm

talked to Carmen

I had my quarterly appointment with Carmen so she can continue to prescribe the Ritalin. I spent part of the time talking about Mom's death, including how the trip had affected me physically, and specifically that my joints hurt much less than I expected given the amount of walking.

A bit later, the three of us went for a walk, and my knees started to hurt a little almost immediately, despite the precautionary naproxen. At that point, I realized that I walked a lot almost every day of the trip, but almost all of it was basically flat, long hospital and airport corridors.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
2025-04-28 09:33 pm
Entry tags:

shiva

We went to Havurat Shalom this evening so I could say kaddish. It was warm and sunny, so we could have the service in the back yard, and I didn't need a mask.

A couple of my old friends showed up, including Elly Freeman, who lived in the apartment next door to ours in New York for a while, and Elizabeth Stone and her twin brother Larry, who I went to college with. There were also several havniks, including two or three I don't know, who showed up because I needed a minyan.

Ruth, who was leading the service, kindly slowed down enough that I could say kaddish, reading the transliterated Aramaic from the prayerbook. Last Thursday, at my mother's flat, I couldn't get out even a syllable of the Aramaic, and I kept falling behind the rabbi.

It was comforting in ways that the other wasn't. I'm not sure how much of that was that I knew more of the people, and how much was because they were there for me to say kaddish: my mother's rabbi was there so my brother could say kaddish, and didn't think it was important for me to.

Adrian and I talked about my mother--Adrian first, because when asked to tell people about her, I drew a blank, because there's so much, and I didn't know where to start.

After the service, my friends stayed to talk for a bit, about my mother and also about the ways grief had felt for them. Some of them would have stayed longer if we'd wanted, but I was starting to feel chilly and had a vague awareness that we'd want dinner at some point.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
2025-04-27 02:04 pm
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Mom: online obituaries and articles about her work

These are focused on my mother's work as a Holocaust educator, and her early life in Germany and France before she came to the United States:

Holocaust Educational Trust: Eve Kugler BEM 1931 – 2025

Jewish News: "She lit up every room"

OPINION: How Eve Kugler changed the world
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
2025-04-26 09:38 pm
Entry tags:

sitting shiva for my mother, Monday

I will be sitting shiva Monday at Havurat Shalom in Somerville (113 College Avenue, a few blocks from Davis Square) on Monday, April 28, starting at 6:00 p.m. Weather allowing, we'll be outdoors in the yard most of the time, so I don't have to worry about masking/covid exposure. Thursday night, sitting shiva at my mother's flat in London, I started sobbing enough that I had to take my mask off in order to breathe.

Please pass the word to anyone who might want to know, who might not see it here.

Since a couple of people asked about this: the plan is to start the service when we get a minyan, and do either the afternoon or the evening service, as appropriate.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
2025-04-25 03:36 pm
Entry tags:

More about my mother

[Expect multiple posts about this over the next days and weeks, but I'm going to put more than one thing in a post, rather than make a couple of dozen short posts.]

My mother's cause of death was metastatic lung cancer; she'd been short of breath for a while but kept insisting nothing was really wrong. Then she fainted on her way to see her doctor on April 14, and her carer and one of her good friends decided to take her to the emergency room instead.

I wish I'd traveled sooner, but last Wednesday Mom told me that I shouldn't come right away, but wait until she was home from the hospital to visit because hospitals are boring. At that point they knew it was cancer, but were talking in terms of weeks or months, and what treatments to consider. Saturday morning (4/19) my brother said we should get there as soon as possible, and we were on a red-eye flight to London that evening. By the time I got there, my mother was a lot weaker, and not up for much in the way of conversation, but she was happy to see me, Adrian, and Cattitude. On the 21st the palliative care team said we should think about whether to send her home or to hospice. Mom wanted to go home, but said that she wanted whichever would get her out of the hospital sooner. Tuesday they told us "24 hours" and that she was too sick to be taken home or to a hospice facility. She died at 2:30 Wednesday morning, with my brother and his partner Linza sitting with her.


Sitting shiva is supposed to be people coming to comfort the mourners. That's part of what happened last night, and it was valuable, but Mom's stepson Ralph asked if Mark or I would be willing to sit on Sunday as well, for the same of my mother's friends from March of the Living (a Holocaust memorial that Mom had been participating in since 2012) could pay a call, and I didn't feel up to that. I wanted to be home, in my own bed, and have my friends comfort me, not listen to more people I've never met tell me how wonderful my mother was. The group had a memorial service for her Wednesday night in Cracow, which was before the funeral.

My mother referred to Holocaust education as her "third career"; she volunteered once to talk about her and her family's experience, and the next time they needed a speaker they asked her again, and she saw work that needed doing and put a lot of time and attention into it. [Put in a link to one of the online obituaries?]


I'm leaning on Adrian for guidance on how some of this can/should work, given that this needs to work for me, her, and Cattitude. Formally, my brother and I are the mourners, but Cattitude and Adrian both love and miss my mother, and she loved them. (Apparently several people who heard her talk about the three of us said things like "Eve was very...open-minded," which is true but misses that my mother loved them both.)
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
2025-04-25 12:20 pm
Entry tags:

Eve Kugler, 1931-2025

My mother died, very unexpectedly, Tuesday morning.

We got to London in time to see her for a couple of days, but by the time she got there she was too weak, and in too much pain, for much conversation. We kept telling her that we loved her, and the last thing my mother said to me was "I love you."

The funeral was yesterday, in London. My brother and I sat shiva at Mom's flat last night, and then Cattitude, Adrian and I fled for home early this morning. At the funeral, and then last night, people kept telling us how wonderful and energetic and important she was.

More later, but I wanted to post something now.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
2025-04-19 03:40 pm

Mom

Things were looking significantly worse this morning, so the three of us are going to London tonight on a red-eye.

I may not be reading much, or I may be spamming everyone's reading pages.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
2025-04-16 03:37 pm
Entry tags:

Mom health update

I just got off the phone with my brother, and don't need to dash off to London. This is the current situation:

There are treatment options for the cancer, but they know it's not curable: the goal is to get my mother more time, and make her more comfortable for however long that is. Mom definitely wants to fight this.

The immediate problem is that there's fluid around my mother's lungs. The pulmonologist described the problem, and said there are two possibilities for dealing with that, and he will come back tomorrow and ask Mom for a decision. Given the hospital schedule and what the choices are, if the first doesn't work she can have them do the other.

The pulmonologist doesn't think the oncologist will want to start treatment until after the fluid is drained, but the cardiologist will also be back tomorrow.

Given all this, I'm not planning to travel before Saturday [three days from now], and Sunday or Monday might be better in terms of both having my and my brother's visits overlap, and giving Mom company for longer. Mark will call me again once they talk to the specialists, to fill me in and maybe discuss travel plans based on what they learn. and decide, tomorrow. In the short term, knowing we're not traveling immediately is helping the three of ust deal with logistics like what to make for dinner, and Adrian picking up a prescription. It also means Cattitude can try to decompress a little, and wait until tomorrow to do laundry.

The other open question is how long I will want to stay in London. One possibility is that the three of us are all there there for a few days, after which they fly back to Boston and I stay longer.
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
2025-04-15 07:00 pm

bad health news about my mother

Apparently the reason I hadn't heard from either her or my brother yesterday is that she fainted, went to the emergency room instead of her doctor's office, and then waited hours to be seen.

A CT scan found lung cancer, in both lungs. They're still waiting to talk to an oncologist, and my brother is on his way to London now. The three of us will be going to London in a few days, possibly as soon as Thursday, or maybe Saturday. My brother has a long layover in Charlotte, and is going to spend part of it looking at airline tickets for us, possibly using my mother's frequent flier miles for one or more tickets.

I spent some time this morning looking up travel-related things that we may not need, but will do no harm, and wondering about Oyster cards is better than doomscrolling. I also called my doctor's office and asked whether there were limits on where the patient can be for a telemedicine appointment. The receptionist said she thought that technically, I have to be in Massachusetts; we agreed that I can call back if I need to postpone that.

My gut was bothering me earlier, which is almost certainly from anxiety, but still has me a little nervous about this trip. (It's been just over a week since I saw the GI doctor.)
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
2025-04-14 05:13 pm

It's a nice spring day, and my feet hurt

My feet hurt because I decided to go for a walk with Adrian and Cattitude, even though one hip and my feet were hurting before we started, and even with an NSAID. I went anyway because I didn't think walking would make things much worse, and tomorrow's forecast is less appealing. It was sunny and 69F/20C outside, with a bright blue sky and delightful spring flowers, including two kinds of maple flowers, red and the underappreciated light green of Norway maple flowers.

We went to the supermarket, and bought ingredients for Passover-suitable lunches that we can make ahead of time. This morning/early afternoon was difficult because I slept later than usual, and Adrian and Cattitude got up later than that, and we didn't have plans for lunch, or useful leftovers.

That was on top of worrying about both my mother and the world situation. I was expecting to hear from my mother or brother by this afternoon, and haven't. I realize that bad news would be, and be treated as, more urgent than good or ambiguous, but I still worry. The time zone difference doesn't help any (it's five hours later in London than here).
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
2025-04-12 01:01 pm

some good (health) news

The advice the GI doctor gave me on Monday seems to have done the job: my gut has been behaving since the visit, which is five days so far:

The doctor told me was to take the imodium (anti-diarrheal) twice a day whether or not I have symptoms, and start taking psyllium (metamucil). I was surprised, because psyllium is generally referred to a laxative; I suspect that's why Carmen didn't think of it. Assuming I'm still fine on Monday, I'll be sending her a MyChart message

I've taken one/day for five days, which seems to be enough. The package instructions are not to take it within two hours before or after other medication, because it can interfere with absorbtion. I'm already taking other medication on something resembling a schedule, which means this one has to be at or a little after 6 o'clock, unless I want to fiddle with the timing on something else. The schedule includes "right after I wake up" and "after breakfast." )
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
2025-04-12 11:44 am
Entry tags:

worrying about my mother

My brother and I are both worried about our mother: she's a lot weaker than she was a few months ago, and apparently hasn't been eating much. So far, the doctors she's seen haven't found anything specific, and/but she has a follow-up appointment on Monday, by which time the doctor will have more blood test results to help him figure things out.

I'm not jumping on a plane tonight, but I will likely be going to London soon, with Cattitude and Adrian. Even if she's feeling a lot better by Tuesday, I haven't seen her in a while, and want to. Mark is probably flying to London in a few days, in any case, even though she visited him for Mardi Gras.

I've done some planning and preparation: we all three have valid passports, and I now a UK Electronic Travel Authorization, which they started requiring a few weeks ago. It took me about 20 minutes to apply, much of that spent repeatedly trying to get their iPhone app to read the RFID chip in my passport, and about two minutes for them to approve it. So I can visit the UK anytime in the next two years, as frequently as I like.

I emailed our catsitter yesterday, and said that I might need them soon but I didn't know how soon, and she assured me someone would be available. (The person I talked to has a small team of cat-sitters.)

Fortunately, the very simple instructions the GI specialist gave me on Monday seem to have resolved my problem (I've been fine since Monday afternoon). Thank goodness for that last-minute appointment.
redbird: full bookshelves and table in a library (books)
2025-04-11 01:15 am
Entry tags:

Consider the Fork

A couple of notes on Consider the Fork, by Bee Wilson, which I read a couple of weeks ago. This started as a belated reply to [personal profile] anne's comment, but I want to post it where other people might see it. (Apologies for any fuzziness, it's past my bedtime.)


I liked it. There's some overlap with the book I read a while ago about the history of refrigeration, but mostly the emphasis here is different. Despite the title, the author starts by talking about wooden spoons, and that they come in a wide variety of shapes and sizes. Having started there, the book ends by discussing some kitchen tools that are younger than most people realize, such as good vegetable peelers.

As [personal profile] acelightning2 alluded to, the Chinese approach, where food is either cut up into small pieces before cooking, or cooked and then cut up in the kitchen, means diners aren't holding anything pointier than a pair of chopsticks.

Something that stuck in my mind: one 19th-century home ice cream maker made ice cream in only a few minutes, faster than any of the ice cream makers you can buy today. A few of these machines still exist, but their owners aren't using them: it turns out that the zinc-lined bowl leaches toxic zinc into the ice cream.